A rough day

12 years 9 months ago - 12 years 9 months ago #38447 by Cynthia
Replied by Cynthia on topic A rough day
Dana having gone though chemotherapy and a lot of it I can tell you that there are days it gets hard to keep fighting. It this whole thing will sap your energy and drain all of the joy out of you. Usually some sleep of a few days of recovery time might help but if you find one of you or both are both becoming depressed you need to address that issue. If there was ever a time one might get depressed I think this situation qualifies. Talk to your Oncologist about this if it is an issue and ask for resources.

Remember Dana one day at a time. Think of yourself as Scarlett with your wrist against your forehead saying in your best Vivian Lea voice Tomorrow is a new day...... as often as you need to.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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12 years 9 months ago #38446 by Dana
Replied by Dana on topic A rough day
When I see my husband smile or laugh i feel so much stronger, I tell him to concentratte on getting well and I will do the rest.
But today was different, it was the first time I think he realized he had cancer and could die, he just looked at me and said "I don't think I can do it anymore, I have no soul, I am just a body, I don't have the energy to leave house". This attitude is what frightens me the most.

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12 years 9 months ago #38443 by Cynthia
Replied by Cynthia on topic A rough day
Dana,

There is not a lot we can do but listen and care. So talk to us you need someone right now. You have a lot going on right now emotionally and emotionally and on top of that I am sure you feel you have to be the strong one on top of that. Let this be the place you come and vent and we will listen and cry and even laugh with you here. Every one seems to forget that the caregiver is affected by this as the one with cancer. If someone asks asks what they can do practice saying yes to them. Having a child picked up by someone trusted can give you a few minutes or rest potentially. Don't forget take care of your self as hard as that can be sometimes is as important as what you do for others. I have been on both sides of this fence and both are hard roads.

I unusually stay far far away form politics and religions. This forum firmly believes that everyone is entitled to their beliefs that what we share as a community is greater than anything else. From what you have said I get the feeling you feel spiritually abandoned. For some even if they have never been to church it could be a good time to find a spiritual advisory in your community, ask around if you don't know of anyone.

We will be happy to give you our two cents and our ears and you will do the best you can sometimes imperfectly one day at a time. That is all anyone can do sometimes.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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12 years 9 months ago #38440 by sara.anne
Replied by sara.anne on topic A rough day
Dana, being the caregiver is sometimes worse than being the patient. The patient can, and should, just let go and try to get through this and get well. You, on the other hand, CAN'T just let go...you have to support the patient, the family, the chores, AND yourself.

What you are feeling is normal. Do you have a family member or best friend who can come for a visit, take you for a cup of tea, or just break up the routine? Wish I lived near you!!!!

Keep up the good work...and you ARE doing good work.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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12 years 9 months ago #38439 by Dana
A rough day was created by Dana
Thanks everyone for they prayers, I kind of need them right now, but I doubt god is listening, I think he stopped a few months ago. Today was a rough day, second day after chemo, the only thing I have had time to do for myself today is breathe. Kids, housework, cooking and generally looking after my husband.
My husband was fine this morning but now is feeling a bit sick, a little dizzy and very tired. I actually got scared at one moment, he looked so weak.
I know this is to be expected but I hate seeing him like that.

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