Hello Forum,
Back from UK, did not go to plan, arrived last Saturday with severe headache.
Sunday paid a visit to local hospital and admitted for observation. MRI following day reported fluid in brain creating the severe headaches and cramps in neck.
Later that evening ambulanced to Neuro specialist unit in Hull for another night of observation. They wanted to take a biospy or remove tumour...yes tumour was mentioned this time.
I wanted to get back to Holland and my own Oncologist and Neurologist so signed papers to get out. Offered steroids to reduce swelling and pain.
Had a comfortable 7 hour road trip back to Holland and very happy to be home again.
Monday I see the Neuro and have torso CT scans....plan of action to be told Monday.
I have been told it has to come out and soon....
Sorry this is short but seeing double when typing....
Chat soon
xxxleigh
Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum