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Chemo is not working

11 years 8 months ago #21154 by Leigh
Dear Stephany,

I am so very sorry to hear your news....

My thoughts are with you both at this time and I am sending you hugs from Holland...

Gr.Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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11 years 8 months ago #21148 by momof4
Stephany,

I am so sorry to hear your news. I know how hard this is on you. Know that you are not alone. If you need us we are here for you.

Please keep us updated,
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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11 years 8 months ago #21144 by Julie
Stephany, i'm sorry the chemo isn't working. Chemo is so hard on a person and then to find out that it has not made an impact must be doubly hard. I don't have any recommendations about how to deal with the news all I can say is we just sort of stuffed it under the rug. Too much to deal with on a day to day basis to deal with how long Dick will last. I don't know how much I want to know about the potential course of the disease. At times I think sure we want to know because that will help make him comfortable and then I think what difference will it make when it all comes down to pain meds anyway.
I'm sure it breaks you heart to see your husband in the shape he is in now. I'm praying for you and Doran. Julie

Volunteer Coordinator
ABLSC

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11 years 8 months ago #21142 by bobmac2
Stephany, I am so sorry. Take your time coming to terms with those numbers- it's been quite a shock I'm sure. Bob is having another CT next week to see what is going on with him. The Chemo has started to affect his kidneys. the Oncologist is changing one of the Chemo drugs. I asked if all the interruptions to the Chemo schedule was nullifying the good it does & her reply that it certainly wasn't ideal. What is Alimta? I wonder if that's where we will be headed as well.
Get some sleep- take care- Lorrie

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11 years 8 months ago #21140 by Patricia
Stephanie i'm so sorry. I hope Lily will supply the drug for you. I'm sure you've read up on it but just in case you haven't this is straight from Eli Lily
http://www.alimta.com/index.jsp
You've taken such great care of Doran ... Know that we're here for you also.
hugs......Pat

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11 years 8 months ago #21137 by Stephany
Just an update for you all. Doran's oncologist says the ct scan shows no help from the chemo, so we're on to Plan B....Alimta. Either the drug company will comp us, or we'll pay for it ourselves. We'll try four cycles, and then reassess. If the Alimta isn't working, then we'll go on to a clinical trial.

There is a clinical trial at the university, Phase 1, for Anthracycline Analog GPX-150.

I've got the packet, and am going to read it when I have a little more time to get my head around the news.

The oncologist says that he probably has about 6-12 months, so we're just dealing with that news right now.

Stephany in Iowa

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