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11 years 2 months ago - 11 years 2 months ago #20300 by Cynthia
One of the worst things that happen to any of us is when we can’t seem to make things better for the ones we love, and I can feel that pain in your words. And your situation is intensified by distance from your support system. As a mother I can tell you that if you were my bonus daughter I would be so proud of you. You have been her advocate and have shown great strength and incredible love for her throughout her battle with blc and I am sure she has taken great comfort from that. Know that you and your family are in our thoughts and hearts. Please keep us updated.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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11 years 2 months ago - 11 years 2 months ago #20299 by Gene Beane
Hello again,

I am sure you are frightened, and scared. This news is devastating as you all have been through so much since the first diagnosis. We recently had a post on here about WHAT IS THE RIGHT THING TO SAY, in this situation I can offer you my prayers that you have the strength as decisions have to be made about treatment. It saddens me that the news isn't better than your last post. I am offering emotional support to you, your journey has been a long one, your being with her all the way has to be comforting to her.
Take care, and keep us posted, prayers coming your way,, Ginger Beane

Hospital Cleveland Clinic r/c Sept.14,2007
Surgeon. Dr Stephen Campbell and Gill
Gene Beane..66 Ford Motor Company
Engineer, retired Vietnam Vet

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11 years 2 months ago #20298 by mrscarpediem
I haven't been around for a while dealing with new news...

My bonus mom (age 48, non smoker, non exposed) was diagnosed stage IV metastatic bladder cancer in June 08. She then contracted Sepsis and MRSA from the hospital and through her dialysis.

After five weeks in the hospital, she came home for a total of two weeks. She started having issues with her right eye and was admitted last friday (when she was supposed to start another round of chemo).

The MRI was clear.
The MRI w/ contrast (MRA) was clear.

On a hunch, due to his only recent experience with his mother in law, the neurologist asked for a lumbar puncture.

She was diagnosed with Carcinoma Meningitis.

Scientifically speaking, they have told us the chemo through a brain shunt would add a few weeks of life, maybe letting her make it to six months in a "best case scenario" ~ I was asked if we wanted to just take her home.

We are, of course, attempting to transfer her to the hands of a neurosurgeon and explore other options and discuss this more thoroughly.

Her WBC is over 47000 right now, she has sepsis again and her creatinine is at 2.4 ~ there is substantial concern she would even be able to handle the chemo and the surgery she'd need.




I'm just so scared. I'm having to call our friends (we all just moved from NC to WV and DC) and I just feel like I'm a character in a nightmare movie sequence...or a flash back or something.



I'm just so scared.

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