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My Father

11 years 4 months ago #17110 by Gene Beane
Mark,
Well it would be sad if they took out his bladder and he still had metastisis. Best to make sure whatever they are seeing in his pelvis is cancer, or arthritis. As you have read if it has spread they usually do not remove the bladder..its a big surgery in itself. As we have all learned sometimes you have to be annoying to find things out, it works, so annoy away!!!! Ginger

Hospital Cleveland Clinic r/c Sept.14,2007
Surgeon. Dr Stephen Campbell and Gill
Gene Beane..66 Ford Motor Company
Engineer, retired Vietnam Vet

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11 years 4 months ago #17101 by marie
Hi Mark,
I've been away from the forum for a bit and I didn't see your post until today. I'm sorry to hear about the news on your dad, and I'll keep you in my thoughts.
Anne (Marie)

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11 years 4 months ago #16853 by Mark Rice
Thanks Pat! Already on it as I have booked in an appointment for a second opinion with a reputable urologist in the area. At first I was a bit concerned about the urgency of removing the bladder and sticking with my original urologist, but I just wouldn't feel right moving forward with major surgery without getting another perspective. A bit frustrated as we're back to square one now after thinking that we were just dealing with the bladder cancer.

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11 years 4 months ago #16851 by Patricia
Mark..i don't know where you are located but you are asking intelligent questions of your uro.......and i wonder if maybe you should seek out another opinion from a Major Cancer Center and top notch Uro? At least it would provide a better platform for you and your father to make a decision on treatment. I mean they have multidisciplinary teams ...an Orthopedic Oncologist might be better to determine bone mets than a rheumatologist??....Just a thought...........Pat

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11 years 4 months ago #16848 by Mark Rice
Sorry to hear floshoe. Looks like a very similar situation to mine. Inconclusive MRI, bone and cat scan, and now they're looking at another bone scan. I suggested a bone biospy to my urologist but they don't want to put him through that before bladder surgery which is a bit puzzling to me as I would prefer a firm diagnosis and then establishing a treatment plan.

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11 years 4 months ago #16843 by floshoe
Hi, Mark.

I am new to this forum. My dad too was just diagnosed with bone metastases two years after bladder removal.

The most frustrating experience for us as of late was getting the final call on whether or not he had bone metasteses. We literally went though four or five different tests to determine this, and each one came back "probably cancer, but not conclusive." If I am not mistaken, he had a CT scan, a bone scan, an MRI, and then maybe another CT?

He finally had a bone biopsy, which confirmed the presence of cancer. It is my (very unprofessional) impression that the bone biopsy is the only diagnostic test which will give you a definitive answer.

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