Hello, Rhonda. Most of us have been where you are right now when we were first diagnosed. I joke that I didn't even know I HAD a bladder!
You are doing absolutely the right thing in seeking treatment at an academic center, especially when there are complicating factors such as your husband's.
I am not personally familiar with bladder cancer treatments at any of the institutions in your area, but any of them are likely to be better than most of the local practices. Most urologists tend to be rather well trained in prostate problems....and this is also noted in the research experience/interests listed at these medical schools.
From reading the curriculum vitae of the urologists at these institutions, I would probably chose
Augusta: Martha K Terris, MD (while others do list some bladder cancer interests, hers seems to be the most extensive.)
MUSC: Stephen J. Savage, M.D., Sandip M. Prasad, M.D., M.Phil.
(Again, these appear to be the most interested in bladder cancer.)
Emory: Mehrdad Alemozaffar, MD
There are probably others at these institutions who could serve as a start, anyway.
Chemo prior to a radical cystectomy is not a bad option. It would help to prevent mets showing up later.
Prior to your discussions with the urological surgeon, you might find this an interesting read:
my.clevelandclinic.org/health/treatments_and_procedures/hic_Urinary_Reconstruction_and_Diversion
While his diversion choice may be limited by his medical condition and the location of his tumors, his age and activity level might lead him to make a choice that would really allow him to continue his active life-style,.
Wishing you all the best...and please let us know how it goes.
Sara Anne
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