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Clean Cysto Today

8 years 6 months ago #37239 by Nix
Great News :laugh: :laugh: :laugh:
Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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8 years 6 months ago #37237 by dukel
Catherine; CONGRADS on your results. Wishing you the best.
Duke

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8 years 6 months ago #37226 by CatherineH
Thanks Mike and George... that big four-leaf clover really works!

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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8 years 6 months ago #37225 by GKLINE
You GO Girl!!!! Very Happy for you! Happy Happy Happy!!!
:) :) :) :) :)

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 6 months ago #37220 by mmc
Congrats on another ALL CLEAR! Great news.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 6 months ago - 8 years 6 months ago #37219 by CatherineH
Hi Mark... It doesn't seem that there is enough data on bladder adenocarcimomas to pinpoint a standard protocol, and it will vary per each patient's case. I am basically trusting my uro surgeon's expertise and comfort level since Vanderbilt is a major center for BC. I had 3 cystos at 3 month intervals and a CT scan at the last one in November, then this one which was at 4.5 months.

Even though my tumor had invaded into the muscle layer, there was no lymph involvement per the path report and no mets detected on my initial CT scan. The bladder wall at the tumor site was resected with two clean margins, and no followup treatment required. Fortunately mine was fairly small and at the bladder dome which made it possible to do a partial cystectomy. The stats are that less than 2% of all BC's are adenocarcinomas. I read that of those 2% of patients, less than 5% meet the criteria for partial cystectomies, so not a lot of case studies available. I feel extremely fortunate at this point and hope things continue to go well.

He also said that if the next cysto and CT scan in October were clean, we can relax the monitoring a bit. That will be at the 20 month mark and I'm not sure what that will look like. It will have to be something I am comfortable with as well.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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