My idea for letter to a local urologist....

14 years 2 weeks ago #31263 by Christine Springfield
Replied by Christine Springfield on topic My idea for letter to a local urologist....
Incredible letter! You captured the reasoning behind the referral process perfectly!

Thanks for sharing!

T3/G3 - Squamous Cell/Transitional Cell Carcinomas
RC w/Studer Pouch 4/25/07

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14 years 2 weeks ago #31262 by kcnorthstar
Replied by kcnorthstar on topic My idea for letter to a local urologist....
Wow Mike! I really identified with your letter. I had to come to the same conclusion and develop the attitude that the doctors I went to could recommend my treatment, but seeing as it was my life on the line, I would be the one making the decisions on my treatment choices. Period! End of story!Several Doctors I saw did not take well to that attitude and my response was "tough sh*t, see ya later"! I feel that attitude helped me achieve the good outcome I had in the end. The other thing I found interesting was the analogy you used of building a house on a cliff. Last year my wife and I built a house on a 70 foot high cliff! And yes, we had to find a foundation contractor that had experience building on a rock cliff. You couldnt have come closer to a letter that I might actually have writen!

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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14 years 3 weeks ago - 14 years 3 weeks ago #31219 by mmc
** This thread discusses the content article: My idea for letter to a local urologist.... **



This was originally posted in the forum but I thought maybe it would be good to post here as well....

The following are just some random thoughts I had about things to communicate to a local urologist. The thoughts are based on my experience and also the experiences I've read from others on this site. In reality, my local urologist highly recommended that I get to a major bladder cancer center and recommended a couple as soon as I had positive cytologies two years after my initial CIS diagnosis and treatment.
Based on what I've read in posts here in the forum, I get the sense that many people are concerned with insulting their urologist and in some cases urologists may be trying convince patients that they know better than the major bladder cancer centers.
In any case, that line of thought led me to these random thoughts about a hypothetical letter (or conversation) with a local urologist after a diagnosis of bladder cancer.
Mike


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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