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Blood in urine after neobladder ??

10 years 3 months ago #26812 by kcnorthstar
I am three years out with a neobladder and I have had a small amount of blood in my urine. Uro scoped my neo and said it looked red and slightly irritated. He also scheduled a CT scan which came up clear. I was told that occasinal small amounts of blood from a neobladder are possible and no need for alarm,as long as other screening tests and scans are clear.

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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10 years 3 months ago #26795 by Dan62
Thank you all so much for taking the time to write such thorough and thoughtful replies.
Best wishes to all,
Dan

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10 years 3 months ago #26777 by Patricia
Melodie....the first 6 months after my surgery i would have a little blood in the form of a small clot....even got a staple once!!...but to my knowledge there has not been any that anyone has told me about...not that they are paying any attention to anything except the mucus and then tell me i have a kidney infection(not my uro..he knows better)..ER's are the worst. I do have occasional bleeding..very slight from my stoma which is normal.
our poor little bowel bladders take such abuse
Increased bowel surface area or contact time with urine results in greater solute reabsorption and more pronounced abnormalities. Patients with continent reservoirs, which have both a greater surface area for absorption and prolonged contact times with urine, have a higher incidence of metabolic abnormalities. Additionally, creatinine is not a good measure of the glomerular filtration rate (GFR) in a patient who received a continent diversion. Varying amounts of urinary creatinine are reabsorbed by the bowel segment used to store urine; therefore, elevated serum levels of creatinine may not accurately predict the GFR.
Just thought i'd throw that in !!:P
pat

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10 years 3 months ago #26770 by Melodie
Dan,

I don't have a neo-bladder but an Indy Pouch and I occasionally find small amounts of blood in my urine...very small clots. After viewing so many posts on this website, I am thinking that blood occasoally turns up after all three diversions. Melodie

Pat,

Would you agree with my comment? :unsure:

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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10 years 3 months ago #26734 by mmc
Dan,

One thing to keep in mind on urine tests. You can often test positive for an infection you don't have. Colonization is different from infection. Unless you have other symptoms that would indicate infection, you should not treat with antibiotics as you could wind up creating antibiotic resistant strains of bacteria.

I seem to have a little blood now and again (and a clot or two if I use a catheter) but my uro said not to worry.

That doesn't mean that you shouldn't get regular cytlogy tests to be sure there are no cancer cells. It is also important that the lab doing the test knows you have a neobladder or you can wind up getting a false positive (as I did).

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 3 months ago #26731 by GKLINE
Hello Dan
I asked the same question in my post "What is all this junk in my urine"
After seeing my family doctor and asking him (he took urine tests and was alarmed by the presence of blood) He sent the test off to my urologist for a second opinion. The urologist said the levels were normal. But, those of us who have a neo bladder are clearly NOT normal.
I am amazed what comes out of me each time. I guess we should be glad it's coming out.

I am concerned about your loss of health insurance, and you skipping Dr visits. Remember, we are still here because someone caught this early and saved our lives. :dry:

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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