My urethra has remained blocked by the scar tissue but we do have a plan to fix it. Dr Bochner never returned any of the calls that my docs made to him but they were able to get help from a variety of great surgeons. They found a surgeon in St Louis who apparantly specializes in Urethra repair. he is actually a good friend of one of my local docs and he will prbably come here for a week or so visit and take care of my issue. His plan is NOT drilling/cutting through the scarring but rather reattaching the urethra altogether.
We had been talking about doing it this year but I had another more pressiung problem with a kidney that had to be removed so we are just going to get stronger/recovered and think a bout this sometime next year. In the meantime, I have an indwelling catheter in the surapubic position and we have managed to find a "valved catheter" that drains when I want it to and without a bag so that is not so bad for me right now.
I do hope it works out but will understand if there are conflicts. I just got good news from the doctor's office. My appointment is next Wed and if everything is okay, we can head home. It seems like forever since we have been there and I am a little homesick.
4 months after RC I started to have problems with urination as it begame harder and harder to push out the urine. A cystoscopy discovered scar tissue at the opening of my new bladder causing the restriction.
Shortly after I had an op to remove the scar tissue and widen the opening and to this day I have thankfully had no problems and my flow is far better.
I remember it taking a good week after the op before urination became normal again...probably due to swelling in the area.
I wish you well and hope that this is only temporary for you...
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum