Hello all, here is my update:
Last time I posted I had just been discharged from the hospital further to treatment for UTI and fever.
48 hours after I was again admitted to the hospital with fever and abdominal pain, I was in the hospital for 10 days and discharged home yesterday.
During my hospital stay I developed sickness and diarrhea for 5 days.
CT scan showed I had a pocket of fluid 12cm x 5cm in left pelvic area. The immediate conclusion made was my neo bladder was leaking.
My Surgeon is based at the Shands and I was at my local hospital …….. MD Anderson.
I don’t know if anyone else has experience where your docs are at different hospitals but it certainly seemed to pose problems for MDA
They referred me to a local uro whom they work with, only for me to be informed by this uro that “we do not clean up other surgeon’s mess” I really could not believe what I was hearing as the cause and type of fluid had not even been established!
My husband phoned the surgeon the following day and explained the circumstances and was advised he would make contact.
During the hospital stay I had various tests a cystogram proved the neo bladder was not leaking after all
Had a colonoscopy , all clear ……… some good news!
Various CT scans
Unfortunately I have come home with another nephrostomy tube and a stent, this is due to a collection of small stones in my left kidney.
I am due to see my surgeon 8/20 to have my tubes and catheter removed ……… can’t wait! But still have to face up to a plan for the spread found during surgery.
Anyway hope this makes sense as I am on the strong painkillers and still recovering from my RC, to say it has been a testing time in my life is an understatement!!!!!!
THANK YOU to all who have sent me PM’s, too many to reply to, but I will try as time passes and I feel stronger, it means so much to me to know that I am in your thoughts and prayers during these extremely difficult times.
