Hi Betsy Mae,
Thanks for the email, I've sent a few emails to the UK alright but from the research I've done the experience seems to be limited there too, I've sent a few emails to people on this site from UK too to see what they're experience is!
Yes I'm from southern Ireland
Just all over the place at the moment, it was such a shock last friday that we're trying to cover all options at the mo! That's why we're trying to get a 2nd opinion from the US from a doc that has alot of experience, just to make sure surgery is the right route and my dads diagnosis is correct etc...we'll have to see what is recommended after that...Maybe surgery in US and then all follow up with our consultant in Ireland who is very good but just doesnt have much practical experience in neobladders...
Just a thought but have you considered trying a hospital in England? My surgery was carried out in Stockport. The surgeon has not done many ops of this nature but I am very happy with my follow up treatment. This will need to be considered if you are going to the States or will you be able to get follow ups in Ireland? I know that many neobladder ops are performed at Christie hospital in Manchester. You could google 'Christie Hospital' and read all about them. I am assuming that you are in Southern Ireland (sorry if I'm wrong) and have a different healthcare system than the UK.
Best wishes and good luck with your quest.
Most hospitals now have a list of accommodations that will give discounts to patients and patients families who need to stay a few days or weeks. If the hospital has a web site check there or check with social services at the hospital. Julie
Thanks everyone for ye're opinions, we're still looking into hospitals at the moment, not sure whether we're going to get 2nd opinion from John Hopkins or SK yet! We're waiting for our records to be realeased over here, then I think it'll prob come down to which hospital can give us the first appointment!
We're hoping that our surgeon here can do most of the follow up care once we get the operation out of the way, we're very happy with him as a doctor its just that with the low levels of BC over here, he hasnt done too many neobladder procedures!! From this website it just seems the surgeon makes sure a difference, that I'm convincing my parents US is the best option for the surgery, thanks to Pat for all her help and also to Zach and Mike for there experiences....I'm so glad I found this site, we'd be lost without it at the moment
With the exception of a few on this site, I'd guess that almost everyone thinks their surgeon was "the best", I know we think that way of Dr. Gill at Standford. If you have the money to travel across the Atlantic for surgery, that's wonderful. Of course, you need to also consider what follow-up you'll need after surgery and plan your time accordingly. Karen's idea of finding a house or apartment is a good one - if you can find one to rent on a temporary basis. I was fortunate that Harry is retired military and I was able to stay 20 minutes from Stanford at a Navy Lodge which had a kitchenette for $69 a night when the price of regular hotel rooms in the Bay area is at least, if not more than, twice that. Baltimore may be a little less expensive than NYC, but the DC area is pretty pricy as well. Grampdonut is traveling from Nevada to Connecticut to have his surgery at SK...maybe he can hook you up with something in that area. Margot and Harry