Thank you so much for the response. Ok, so I have skipped a bit. Back in late October early November he started noticing that he had to urinate often. More then usual and it was becoming bothersome to him. He let his doctor know what was going on who ordered a cytology test which shows hematuria.
This is what it says on the lab result for the cytology:
DESCRIPTIVE DIAGNOSIS: Highly cellular specimen consisting of malignant cells with features consistant with high grade transititional cell carcinoma.
RECOMMENDATION: Follow up as clinically indicated"
Uro also gave him a prescription for ditropan. As I stated, he goes for a cystoscopy on June 4th. So, we are at the very beggining of everything...I think.
When will they do a TUR if they need to do that?
My biggest concern is him having to go through the BCG treatment (if it is indicated) after the cystoscopy because his immune system is supressed because of the transplant. He did an IVP and a CT scan also. I forget what was said about those tests...nothing was seen, I think.
As far as me being in love with the VA ....not entirely true...my partner has managed to have some very good doctors as so many who work for the VA are. He has also had a nasty, uncaring, overworked doctor that he never wants to see again (in the VA system.) All that stuff going on in DC is very unfortunate, my partner was there in '92 doing clinical testing for the "now" widely accepted Hep C treatment and he says that building #18 is very much the same as it was when he was in it back then. I do not want to get political, but there are so many veterans that deserve so much more then they will ever get from our government who has/had employed them.
Rosemary, I am so sorry to hear of your sister, I will pray for her.
Ali...i'm with Rosy...how can they make a diagnosis of bladder cancer if they saw nothing and hasn't had a cystoscope yet. Everyone has microscopic blood in the urine. I would seriously consider another opinion even tho you're in love with the VA hospitals...they haven't gotten such good press lately. Pat
Hi. I'm just a little confused about how the BC diagnosis was determined. You say a CT scan showed no tumor growth. Has he had a cystoscopy? I'm sorry, I'm just a little confused how it was determined without a cystoscopy or a biopsy. Can you enlighten me a little and then maybe we can help you to sort through this.
You are lucky that he was able to get his liver transplant. My sis has Hepatitis C but is not a candidate for transplant because she cannot tolerate the anti-rejection drugs and she is prone to seizures. But, like you say, that's another forum on another day.
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006