Forum

× Welcome click the New Topic button to post

BCG is best

11 months 3 days ago #56581 by Alan
Wow. Yes, you have had a lot going on that is unusual. A doc with 8 years of experience has to be good! Enough experience to be on top of things yet young enough to be in touch with the newest ideas and treatments. It sounds like you are making all the right moves with some good help!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

11 months 3 days ago #56580 by Pixie91
Thank you, Alan! Yes, they have alternated CT and scopes since nephrectomy. What makes it even more rare is that I am a 48 yr old female. Original symptoms started when I was 47. Honestly, I urinated blood on and off for a little over a year before they found it! CTs with contrast never caught it( human error because after the pyelogram verified it and surgery was done they went back to the most recent CT before surgery and amended the results). They did cytology which showed the problem, that led to the pyelogram to find tumor in the renal pelvis. Nephrectomy biopsy was T1. Dr said the top of ureter had a small area that looked irritated but no cells. Said it was a good thing we got it out when we did. So that was in March. Have had 2 CT and 2 scopes since then with the last finding this, of course...3 tumors in bladder came back as Ta. He referred me to a new oncology/urologist (he has good reviews, only 8yrs experience but at a university hospital who sees a lot of patients), yesterday but said BCG should start in a few weeks and possibly another TURB by new Dr.
Yes, my circumstance is extremely rare and I am having a hard time finding others to talk with who had same situation. I know there are many out there...curious how many under 50.

Please Log in or Create an account to join the conversation.

11 months 1 week ago #56554 by Alan
Welcome Pixie. Any advice that you would pick up here OR an internet site is worth.....well you know what I am saying. Plus no one here is a doctor, just many that have been there and done that to share experiences.

Yes, BCG is effective for a majority of bladder cancer patients. Your situation is more complicated with prior kidney cancer. I presume that you have had the usual extra tests like a CT Scan to read the torso for any other involvement? Also, my experience is you want to be seen by an office that treats a lot of bladder cancer, so many see the majority as prostate issues and of course part of a team watching the kidney. If you have any doubt many encourage a second opinion for peace of mind and a set of fresh eyes.

Net/net to answer directly, BCG will probably be used. Keep posting as you have other questions, someone should be able to help.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

11 months 1 week ago #56553 by Pixie91
What treatment is best to beat urothelial carcinoma?? Mine started in my left kidney, which led to removal of ureter and kidney in March 2018. I knew odds were high for it to show up in bladder within the first 2 years but DID NOT EXPECT them to find 4 small tumors last week during cysto. Waiting on pathology but was already told to expect treatment. Is BCG the best? Kidney tumor was T1..

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 1666 Guests 
Shacky73's AvatarShacky73

Legend: Site Administrator Global Moderator User Banned

Statistics

Today Total Opened: 0 Today Total Answered: 9 Latest User: Pollyann6
Yesterday Total Opened: 1 Yesterday Total Answered: 5
Total Posts: 53034 Total Subjects: 6912 Total Users: 8507
Powered by Kunena Forum