Thanks again. I've spent the morning reading every word of every report available to me through the urologist and hospital patient portals (and since the pathology reports weren't in either place, I called the urologist office yesterday and had them emailed.) Ultrasounds, a CT scan, an MRI, path reports, surgical notes, patient visit notes...no mention of CIS.
At the hospital with the first procedure it was mentioned to me that I might have to have a nephrostomy tube due to the position of the large tumor, possibly blocking the right ureter, which she couldn't visualize during the surgery. That didn't end up happening. The CT scan at the hospital after the surgery, and ultrasound after the second TURBT, showed a urinary spray from the right ureter, and no kidney enlargement or other inflammation that would be seen with a blockage. But I'm still concerned I might wake up with one after this next TURBT. The little I've researched shows the tube coming from the patient's back, which means care of the site would require someone else (which worries me because it's not something I would want teens to take on, but I really don't have anyone else). The procedure for changing the leg bag and tubing also looked complicated and somehow scarier than the process of switching from the large bag to the leg bag of the urinary catheter (which I didn't do anyway). Does the need for the nephrostomy tube ever go away so that it can be removed?
One more question that someone may be able to answer...I have rheumatoid arthritis, currently in "remission," and I'm on a several-year break from the methotrexate I took for about 5 years. Anyone else with RA?