Kat,
When ever I have have a problem I transfer it to my doc & care team. I put them to work on a solution. Hopefully this can work in your situation too.
I made sure doc and the care team knew that the stent pain was unacceptable and needed to be resolved immediately. I needed to be seen now, otherwise I needed an immediate referral to pain management or neurology. I was seen two hours later - not my first schedule busting emergency.
My doc had three ideas - he could pull the stent and 'see what happens', but if the ureter closed it could mean placing another stent immediately. He could try relocating the stent and see if that would help. Lastly, he could place a nephrostomy tube to drain urine and provide treatment access to the renal pelvis and not need to place a stent.
He pulled the sent and life was good again, for about 8 hours. Flow of urine was blocked. A new stent was placed higher up and pain was not a problem. At least there were other options once doc considered pain as something that also needed to be considered.
I hope you and your care team can find a solution to your particular situation. Make them find a way to make your life better as you continue down this road.
I am male, ex fire/paramedic, crotchety 70's physically active rancher. I lost one kidney to a drunk driver years ago which has complicated treatment, loss of the second would mean relying on dialysis, and I'm not ready for that. Upper tract cancer presents tough choices, most reliable journal articles and organizations recommend removal of the kidney, although treatment with careful monitoring may be a possibility. To me, it is worth a careful try.
Good wishes in resolving the pain problem,
Best
Jack