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11 months 4 weeks ago #54451 by sara.anne
Welcome, but sorry that you had to join us!!

You need to find out a bit more about your tumor diagnosis. I seriously doubt that it was a "4" because if it was that is about as bad as it could get and you would be in the hospital having your bladder removed!! BCG is given when the tumor is still localized in the bladder lining and is considered "high grade." You should ask for, and receive, a copy of the pathology report from your urologist and save it for your records. That way there is no question about what the initial diagnosis was.

It appears that you most likely have a very treatable type of bladder cancer. BCG is a great treatment in these cases. Its purpose is to "kick up" the immune system which then fights to reject the cancer cells in the bladder lining. Often as the treatment progresses so do the side effects.....and this may indicate that the BCG is working! Most of us who have had BCG treatments also have maintenance doses following the initial 6 weeks induction treatments as these have been shown to increase the effectiveness significantly

Once you have your path report you should be better able to understand exactly what you might be facing. And we might be able to answer any questions you may have,.

Best of luck to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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11 months 4 weeks ago #54450 by bug1
Hi, I had 2 episodes of blood in my urine. An ultrasound was done the result was I had a cancerous tumor. That was followed by surgery to scrape out my bladder. I had my 2nd BCG treatment today.
I have had no side effects so far.
I feel like getting info from my Dr difficult. The tumor was small 1.5 cm. I think it was grade? 4
I know the 4 is right.
From what I understand this is going to be easy to manage although it is the type that reoccurs often.
I am still scared.

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