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Three month check-up after six weeks BCG

1 month 1 week ago #54016 by Alan
Glad MDA was up and running. I had read some units were flooded! Congrats on good reports!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 month 1 week ago #54015 by DonnaD
Thank you, Jack. Prayers for you also.

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1 month 1 week ago #53993 by Jack R
Donna,

Glad to hear that it is working out for you at MDA, and with reduced strength BCG.

Wishing along with you for a good next check-up.

Best,
Jack

6/2015 Bleeding, hurting, scared
DX: HG Papillary & CIS
2 Years and 24 BCG/BCG+Inf
The CIS remains superficial.
It goes away then returns again.
Clean as of 5/17; Adding additional
drugs to BCG maintenance schedule.
Remaining Hopeful.

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1 month 2 weeks ago #53992 by DonnaD
Hi Everyone,

As I write this I am under a hurricane warning but feel prepared for it. I had the third half-strength infusion of BCG of my three month per protocol after the six infusions. All has been great and such a big difference having it done at MD Anderson. I go back in six weeks for a scope and hoping still for no signs of cancer cells.

After the second and third infusions, this time, I had incredible bladder spasms and chills, but no fever. I drank tons of water and took some meds for the bladder pain and spasms and here I am 24 hours later doing well.

Best wishes to you all - I'll be in touch again in the future.

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1 month 2 weeks ago - 1 month 2 weeks ago #53990 by Sean T
I missed what the negative impact BCG was having. I have my last round of three this coming Tuesday and then I go to 3 rounds every six months (as long as I stay C-free) and I am so glad as I'm starting to really get a gross feeling from the BCG. I can't explain it other then just blah. I remember Sara Anne, I believe, saying that the negative feelings means the BCG is working. I don't remember if she meant that in regards to the bad feelings but I always use her statement to comfort myself during the BCG treatments.

08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
Start BCG then a cysto every three months and, if all clear, 3 rounds of BCG. Repeat for 2 years. As of latest cysto, July 27, 2017 - cancer free!
The following user(s) said Thank You: DonnaD

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2 months 1 week ago #53868 by sara.anne
That is good news Donna . It is so important that patients take charge of their care . I wish more would do it!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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