Glad to hear that it is working out for you at MDA, and with reduced strength BCG.
Wishing along with you for a good next check-up.
What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0
As I write this I am under a hurricane warning but feel prepared for it. I had the third half-strength infusion of BCG of my three month per protocol after the six infusions. All has been great and such a big difference having it done at MD Anderson. I go back in six weeks for a scope and hoping still for no signs of cancer cells.
After the second and third infusions, this time, I had incredible bladder spasms and chills, but no fever. I drank tons of water and took some meds for the bladder pain and spasms and here I am 24 hours later doing well.
Best wishes to you all - I'll be in touch again in the future.
1 year 3 months ago - 1 year 3 months ago#53990by Sean T
I missed what the negative impact BCG was having. I have my last round of three this coming Tuesday and then I go to 3 rounds every six months (as long as I stay C-free) and I am so glad as I'm starting to really get a gross feeling from the BCG. I can't explain it other then just blah. I remember Sara Anne, I believe, saying that the negative feelings means the BCG is working. I don't remember if she meant that in regards to the bad feelings but I always use her statement to comfort myself during the BCG treatments.
08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Sept. 12, 2018 - cancer free!