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Diagnosed 4/19/17

1 year 7 months ago #53308 by Cynthia
MVAC is a heavy duty chemo but doable from what I have seen. The port will help a lot and it is not bad getting it in. A few hard won pieces of advice I hope you don't mind of course ignore me and do as your doctor says. Don't let you stomach get empty it is not about being hungry it is about not being sick to your stomach, I always kept a baggy of crackers with me. Start your anti nausea meds early I found for me that if I took them before I get nauseous that it worked better for me so ask if that might help. Stay on top of anything out of the ordinary as with any chemo things can change quickly. For instance if you think you are getting a cold let them know now a day or two can be the difference between an antibiotic and the hospital. I often think the whiners of the world are better off during chemo than the stiff upper lip types. Talk to a nutritiouist if you can they will tell you things like you need more protein while going through chemo. We are here for you please keep us updated.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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1 year 7 months ago #53300 by Sunchaserwolf
Thanks Alan!

CT Urogram 3.5 x 2.8 tumor found. - 3/23/17
Cystoscopy - 3/28/17
TURBT 4.5 x 4.5 x 1.3 cm urothelial carcinoma removed - 4/11/17
Dx T2G3 -4/19/17
MVAC begins - 5/9/17

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1 year 7 months ago #53299 by Alan
Thanks for posting, we are all here to listen and encourage.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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1 year 7 months ago #53298 by Sunchaserwolf
Update: I start MVAC chemotherapy treatment next Tuesday. It will be 2x a week every other week for eight cycles. I attended a Chemo Teaching class to learn what to expect from the different treatments.

I will also get one of those port-a-port catheters in my chest the following week so my arms don't become pin cushions.:blink:

Good news: CT chest scan did not show a tumor in the lungs. Let's hope the MVAC can wipe out anything that might've escaped. I know the chemo will be rough but I'd rather not risk tumors popping up elsewhere down the road. Discussion about the RC surgery will start after the chemo is finished.

CT Urogram 3.5 x 2.8 tumor found. - 3/23/17
Cystoscopy - 3/28/17
TURBT 4.5 x 4.5 x 1.3 cm urothelial carcinoma removed - 4/11/17
Dx T2G3 -4/19/17
MVAC begins - 5/9/17

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1 year 7 months ago #53273 by Sunchaserwolf
Hi Sean,

Yeah it it's. I still haven't agreed to the RC and am leaning against it so it may not be an issue. We'll see. If I can find an MD who can answer my questions then I'll consider it.

CT Urogram 3.5 x 2.8 tumor found. - 3/23/17
Cystoscopy - 3/28/17
TURBT 4.5 x 4.5 x 1.3 cm urothelial carcinoma removed - 4/11/17
Dx T2G3 -4/19/17
MVAC begins - 5/9/17

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1 year 7 months ago #53272 by Sean T
Good luck. I guess the ACA open window for getting insurance is over now, hey?

08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Sept. 12, 2018 - cancer free!
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