Joanne,
You have now found others who are living with or caring for those of us with bladder cancer. The initial diagnosis of CANCER hit many of us hard - it sure did me - an left us lots of questions and few if any answers.
This is a good place to read of others experiences or ask questions - all subjects are fair game. You won't get medical advice, but can learn of the path others have been offered or taken. I have found the site to be extremely valuable.
Unlike the serious oncologists, the urology community, in general, 'appears' to look at superficial bladder cancer as a routine condition that requires neither swift action nor providing the patient with much information beyond the immediate treatment plan. To that end, I offer the following trusted website that is FULL of general information about bladder cancer - a good starting point for learning more.
http://www.cancer.gov/types/bladder
If it had to be cancer, as I have come to learn, superficial bladder cancer, diagnosed early, is a good choice. It is highly treatable, treatment has minimal side effects and there is the option to remove the bladder if the cancer advances. A real plus it that treatment such as BCG can take place through an existing "opening" instead of through a surgical incision.
It sounds like you are right where many of us were as we started on this journey. I hope you will find this site as helpful as I have.
Best,
Jack