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Neobladder-Vagina Fistula post RC/Neo/T3 BC

2 years 5 months ago #51355 by camillewhaley
Hi all, I'm new to the site. I'm an active and otherwise healthy 51 yo female living in CT and was diagnosed with pT3n0m0 bladder cancer in Jan 2015. After several months of gem/cis neoadjuvant chemotherapy, I had an RC, full hysterectomy, and a neobladder. Dr Joseph Wagner at Hartford Hospital. Unfortunately had a Neobladder-Vagina fistula directly following the RC. I've never had a chance to use the neobladder. Due to complete incontinence due to fistula, I've had foley and SP catheters in dwelling since the surgery over a year ago. Two attempts to repair fistula with an expert surgeon at NYU Langone failed (9/15 and 4/16). I am now going to do an uncommon conversion surgery to a new urinary diversion - either the Ileal Conduit with external stoma/bag or a continent catherisable internal pouch (Indiana or other type). Dr. Bernard Bochner at Memorial Sloan Kettering CC in New York City will be doing the surgery. Anyone have any similar experience or current situation? Either with fistula, or with complications due to neobladder? I'd also like to hear of complications you've had with Indiana Pouch and/or Ileal Conduit choices. Best news is... my one year CT Scan a couple weeks ago was NED. Grateful EVERY day. Thanks!

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