Please please please find another doctor. I went to a doctors and was not comfortable with him. I was fortunate enough to know someone who gave me a recommendation of another urologist. I looked on line to get reviews by patients and went to him. I felt much more secure and comfortable with him. Do your homework you are your own advocate.
I picked up my medical records today so I wanted to give a follow up. I was SHOCKED to find out I had two tumors removed during my surgery, my doctor only advised of one. Both were cancerous and in two different areas of my bladder.
I have also learned during the CT scan at the ER they had also found a mass in my upper right quadrant - no one advised me of this.
I'm blessed I found this site and for the advice you guys have provided me. I'm hoping I can get into the Mayo clinic soon for a second opinion. Thank you again!
The following user(s) said Thank You: lotech35, dani
4 years 2 months ago - 4 years 2 months ago#50313by jeffrx
Just for reference, my TURBT, in which a 3 cm tumor was removed, took a good 2 weeks for me to recover from. I don't think a couple of days is enough to get back to normal activity for most people (I guess it also depends on how much "scraping" was done).
The doctors never know exactly what they will take out until they go in with the cytoscope and then they can't tell you the results until they send it off to a lab. Still, your care seems pretty erratic. I agree with the others that you should go with the more experienced doctors.
Also, the fact that they told you to get a scan at 3 months is hopefully good news (but they should have explained exactly what's happening).
12/2015 - TURBT, non-invasive T1, mixed grade, 3 tumors
1/2016 - Begin BCG weekly for 6 weeks
Last edit: 4 years 2 months ago by jeffrx.
The following user(s) said Thank You: lotech35, Khristabella
I agree 100% with the 2 previous posts. Get your records and get yourself to a doctor & facility that specializes in BC. My husband was diagnosed November of 2015. His was aggressive & invasive cancer. He had his bladder removed 12-7-2015. His urologist diagnosed the cancer but from there we went to a cancer center with a doctor who specializes in bladder cancers.
As far as having a PCP. It's always good to have a doctor who can coordinate all your care; a doctor to see for sore throats, vaccines, etc. Depending on your type of health insurance, like if you have an HMO, you'll need to have a PCP.
But whatever you decide to do, please follow the advice you were given in the previous posts.
I checked out the posts in this forum when my husband was just diagnosed because we felt so alone and helpless. After his surgery, I finally posted something. I received so much support and positive feedback. I found a place for information.
I wish you well, Khristabella, please let me know how things are going for you.
The following user(s) said Thank You: Khristabella, dani