USC is one of the very best places for treatment of bladder cancer!! You are fortunate to be there.
I think that the reason that you are not hearing from women with neobladders is because very few have them, and most of them (at least the ones I know about) have been unsuccessful. IF you are seriously considering this, be sure to ask your surgeon to allow you to talk to other female patients he has treated who have a neobladder so that you can assess the situation for yourself and make an informed decision.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Jeanne, This whole thing is a kick in the teeth and hard to get your mind around we know that well here.
I did not have a choice og the Neo as my Urethra was involved so I have an Indiana pouch. No matter what option you chose there will be a learning curve and we will be here for helpful hints not matter what you do chose. Another good statistic is when interviewed a majority when asked would recommend the diversion they have.
My content diversion consists of a stoma in my naval with an internal bag as Sara Anne said. You have to plan ahead but I just keep a makeup pouch in my purse with my cauterization supply's in it. It does not hurt when you catheterize and it does come in handy when you hike, lol. If you have questions fire away we are here.
T2 g3 CIS 8/04
Chemotherapy & Radiation 10/04-12/04
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society