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Newly Diagnosed

4 years 9 months ago #46022 by DougG
Cpratt,

Glad you were able to get your surgery scheduled quickly and that your doctor thinks that is caught early. You are young to have bladder cancer. I want to commend you for getting in to a urologist when you saw blood in your urine. That was very wise. You will be in my prayers for Wed. Did your doctor indicate whether or not you will need a catheter? Depending on the location of the tumours, sometimes a catheter is needed.

Best wishes,
Anita

Anita
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4 years 9 months ago #46009 by dieseldoc
QUASAR, I don't think you offended anyone, I was not offended. You have the right to your opinion.

T1,NO,MO battling bladder cancer since 2005

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4 years 9 months ago #45981 by cpratt0816
Hello Everyone,

I found out yesterday I have a tumor in my bladder. The Urologist believes it was caught early. My only symptom was the blood in the urine. I am 25 years old. I know this is a very rare cancer in young people, but I guess no one is immune right? Anyway, I am having surgery on Wednesday followed by mitomycin. Any information will be helpful.

Thanks!

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4 years 10 months ago #45900 by GKLINE
Since I am not a Dr. and I need a simple progression:

first Dr. visit.
Scope into the bladder.... Look at the TV monitor and see the cancer.... Yuck!
Schedule first TURB

First TURB
They remove the cancer and take out any cancer they can. Send out the cancer to the lab for pathology. read pathology report and proceed.

Second TURB
Again they go into the bladder and remove a layer of tissues where they removed the cancer. Send this to pathology and see of the margins are clear of any cancer cells.
If they are clear....... Go to BCG treatments.
If cancer cells still present.......Go to Bladder Removal.

I know it is simplistic and many things can go differently. But this is always the protocol to follow. And AGGRESSIVELY follow it. And if not...... Get another Dr.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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4 years 10 months ago - 4 years 10 months ago #45899 by dieseldoc
I don't know about everyone else, but I don't just take any old doctor that comes along, I want a doctor that is not uncomfortable with talking with their patients.
As a new cancer patient you better take the time to judge, because the doctor that you have might not be the right doctor for you. Some uro's don't know a thing about bladder cancer, and some are well versed in it and the treatment of it.

JOEL, which doc do you want. One that is going to rely on NED or a doc that is going to control NED. Because (NED) sometimes jumps ship.
The friends you have sometimes don't know how to handle the CANCER word. most of them are not running from you, they are running from that. Some will come back, some will not, you don't need to worry about them.

Quasar, If it never comes back on you then you are a very lucky man. But please don't count your chickens........ I REALLY hope it dose not.

T1,NO,MO battling bladder cancer since 2005

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4 years 10 months ago - 4 years 9 months ago #45896 by quasar
Since my message seemed to offend. I have removed it.

TURBT 7/3/13 at age 60
CIS carcinoma in situ
Ta papillary 2 cm
BCG 7/25/13-8/29/13
maintenance BCG 6/14

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