Just Diagnosed with high risk bladder cancer

Thanks for the info. I did go to the site you mention and read several of the posts. They were all helpful in their own way. still have a lot of research to do.

My sympathy on the shock and dismay you'll be feeling with your diagnosis. I have an ileal conduit after radical cystectomy done October 2011. Hard as it is to imagine right now, life does return to a "new" normal, and after a few ups and downs, it is nothing as strange as you are imagining it to be.
I belong to several other online groups. One has been particularly useful, and I would recommend checking it out.

www.inspire.com/groups/bladder-cancer-advocacy-network/discussions/

If you type "Indian pouch vs ileal conduit" into the Find It box in the upper right corner, you will see many previous responses to your question.

Good luck and best wishes.

I was just diagnosed with high risk bladder cancer. Have had several test over the last few month to find this out. I live in Rochester NY adn will be treated URMC. My next step is to have my bladder removal. I am trying to decide whcih procedure I want to go with. The neo bladder is way down the list as I had to have scar tisssue removed to be able to get the scope in to do the biopsi. My DR says there is a good chance that it can come back and would require more surgery to remove it again. I have to make a decision real quick because of the advaance stage and the size of the tumor. I am 62 and have never been sick. This has thrown my wife and I for a loop. I would appreciate hearing about experiences with the Indiana pouch and Ileal conduit to help me make a decision. Thanks in advance