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Fighting a Rare Bladder Cancer/Seeking Community

6 years 1 week ago #43643 by Rockyiss
Hi chelsiaann , I am sorry you have a reason to be on this site, but it is a good place to come for support. My husband and I have both heard we have cancer over the years and we are still here as are many people that have had it . It will be a fight for you but, you sound like a strong person. My prayers are with you .Rocky

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6 years 1 week ago #43642 by upnorth
I have Bladder Cancer ! There is nothing more I can do about that but fight it. :angry:

Now as for living with it..... Well that is an entirely differant thing! ;)

I now look at everyday this side of the grass as a wonderful gift. I go out and do as much as I can every chance I get. I refuse to sit in a corner and wounder if, or when I might die. I try not to let the trials of everyday life bog me down on my never ending quest for FUN. :cheer:

You sound like your a lot like that also. That is a good thing because as we all know...... the one person that can bring you down lower than anyone else is ...... YOUR-SELF!

You keep fighting!!! And we will be here to try and help as much as we can. B)

Mark

Age 51
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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6 years 1 week ago #43641 by Nix
Chelsiaann,Six years ago, when I was dx'd, I wanted to hear, "you will be cured of bladder cancer, don't worry about it, you will be fine".
Until my brother said, months later, "you will never hear a doctor say that with any cancer". It hit me with a sledge hammer. Of course you will not hear that, but because you have found this site, you will see so many survivors here to support you and listen to your concerns, because mentally we have all been exactly where you are right now.
It doesn't matter exactly what your diagnosis is, we all have heard "you have bladder cancer".
Stay positive, keep learning all you can about bladder cancer and visit us often with any concerns.
We are in your corner rooting you on!

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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6 years 1 week ago #43640 by Alan
<strong>GKLINE wrote:</strong>

Geeez! Helena Montana!

I JUST came back from Bozeman MT 2 weeks ago. I drove my daughter out there so she could work as a ski instructor at Bridger, and the Montana Conservation Corp at Big Sky. She can now work 70 hours a week and live below the poverty level.

And She is going to LOVE IT!!!!!!

I must follow up on my first post. All during my treatment and recovery, and the 4 years since..... The medical community never said the words "live a normal life" or "CURED" I am sure this is a policy caused by Political Correctness and OUR inability to realize that our lives take many turns and twists and "anything" is possible.

But, this group is NOT politically correct....... only survivors, who wanted a place to go,where they can speak of their experiences,and give hope to other people going through the same scarey process.

Find a GOOD DR.
Have a Good support system
Give this thing HELL!
Have a good attitude
Get well!


Sincerely
George



George, I ALWAYS look forward to what you have said! :silly: :cheer:

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 1 week ago #43639 by GKLINE
Geeez! Helena Montana!

I JUST came back from Bozeman MT 2 weeks ago. I drove my daughter out there so she could work as a ski instructor at Bridger, and the Montana Conservation Corp at Big Sky. She can now work 70 hours a week and live below the poverty level.

And She is going to LOVE IT!!!!!!

I must follow up on my first post. All during my treatment and recovery, and the 4 years since..... The medical community never said the words "live a normal life" or "CURED" I am sure this is a policy caused by Political Correctness and OUR inability to realize that our lives take many turns and twists and "anything" is possible.

But, this group is NOT politically correct....... only survivors, who wanted a place to go,where they can speak of their experiences,and give hope to other people going through the same scarey process.

Find a GOOD DR.
Have a Good support system
Give this thing HELL!
Have a good attitude
Get well!


Sincerely
George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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6 years 1 week ago #43638 by DougG
Chelsiaann,

Sounds like you have a great attitude! As Cynthia says, "Chin up! Ever foward." Prayers are with you as you get your port and start your treatments. Hope that cold is better by Monday. Best wishes to your partner; glad you have a good support system.

Anita

Anita
Forum Moderator
Caregiver

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