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newly diagnosed sessile bladder mass

6 years 2 months ago #43127 by CatherineH
Your circumstances are similar to mine. My gyn found the mass during a pelvic ultrasound and she immediately referred me to an area urologist. Since the ultrasound showed a definite "mass" in there, the uro scheduled me for the TURBT the following week without even doing a cystoscopy first. I was sent for a CT scan two days before the surgery which he used as a reference for removal of the tumor.

All that eventually lead to me being referred to Vanderbilt Medical Center for a partial cystectomy in Feb. 2010. Since then, I have had a pelvic/abdominal CT scan every 11 to 12 months to check for recurrence/mets, along with either 3 or 6 month cystoscopies. I asked my surgeon about the CT vs. MRI and his preference so far has been the CT scan. Even though I have some concerns about the radiation, I have left it up to his expertise to choose which gives him the clearer picture of what is going on in my body. So far, I have been clear each time!

During your appointment, ask about the merits of CT vs MRI, and I'm sure they will tell you their preference as to which might give them a better image for what they need to do at this point. Discuss any concerns you have.

Write your questions down ahead of time because I know so often I have forgotten something during the stress of just being there discussing my diagnosis or procedure. Will be thinking of you... and those precious little ones, this week.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 2 months ago #43126 by Joey
Sak, I also go to JHH and my urologist is Dr. Schoenberg. He is one of the best. My initial tumor was 4CM x 2.5cm. I was dx back in 11/2007 and most likely had one recurrence in 05/08. I did have an initial CT scan where the tumor was seen prior to the removal. I then also had a MRI which was negative with the exception of the tumor. I have had 30 BCG treatments since and have not had any further recurrences. I am followed now every 6 months for my cysto.

Joey

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6 years 2 months ago #43125 by sak921
Thank you for your thoughts. I do live in Maryland and am going to JHH. I have read they have a few specialists there. I wonder if anyone on the network could send me advice.

One question... the urologist is going to do the cystoscopy and I think small biopsy in 2 days. I think you mentioned the next step is the bigger biopsy. The urologist is ordering a CT scan for staging. Do you think I should ask for MRI for staging? I was doing some reading and it looks like MRI might be better?


I do have some left flank/kidney pain and left hip pain. I am really hoping it is not metastasis. I am so scared. I have 3 small children and this is so overwhelming. I can't even believe it is happening. I really didnt have too many symptoms but the us looked like it was a pretty big tumor 3cmx 1.8x 2.8 cm.

Do some people end up having chemo and radiation before the big procedure. I imagine it will matter if I have metastasis or not.

Any advice is welcomed.

Thanks.

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6 years 2 months ago - 6 years 2 months ago #43124 by CatherineH
Hello... I am so sorry you find yourself here looking for information on bladder cancer. I was not familiar with the term "sessile" and did a bit of reading on the internet but there isn't a lot of references out there that I found. I know you are scared out of your wits hearing this from your doctor after your ultrasound. At this point, don't get ahead of yourself because it is human nature to jump to thinking the worst. Points to think about:

1) Your urologist is the first in line for determining what needs to be done. The cystoscopy will allow him/her to look inside your bladder and take tissue samples for biopsy purposes. That will be a start to know how to proceed from there.

2) Regardless of what the biopsy says, the tumor will have to be removed through a procedure called a TURBT which is a transurethral resection of a bladder tumor (mass). It's done under anesthesia as an outpatient procedure, and pathology will be done on tissue that is removed for a more complete diagnosis.

3) We strongly encourage a second opinion after your path report comes back, and at a hospital/center that specializes in bladder cancer. Studies have shown that an experienced facility with a high volume of bladder procedures often leads to better outcomes for patients. A second TURBT is often done to confirm the findings of the first one. Much depends on whether this mass is found to be invasive, aggressive, or possibly even benign. There are many variables at this point.

4) Find out the level of experience of your referred urologist. Ask how many times he has seen your particular type of tumor. Even if he does the cystocopy, you can ask to be referred to someone else to do the TURBT if you are not satisfied with his credentials. I see you are in Maryland, and I'm sure some of our members can recommend some doctors/hospitals who are considered tops in this field.

I know this is not very comforting to you, but knowing what to expect hopefully can help you formulate some questions for your appointment. Please let us know how your cystocopy goes and I send you my most positive thoughts as you go through this.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 2 months ago #43123 by sak921
HI,

I am a 38 yo non somker with a newly diagnosed large sessile bladder mass. I am schedule for a cystoscopy in 2 days with hopeful biopsy. The radiologist dx it as an incidental finding during a pelvic ultrasound. Is there anything you would recommend I ask my urologist during my cystoscopy appointment. I am a mother of 3 young children and everything I read about sessile tumors scares me. Can you help reassure me? Will i make it to their weddings?

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