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We saw Dr. Wilson yesterday!

7 years 7 months ago #37693 by Patricia
Bambi,
Did neither of the urologists have an emergency number to call?
very strange. I hope he doesn't end up with a nephrostomy tube to drain the kidney. It sure sounds like hydronephosis to me right now with the level of pain he's having. I would definately hit the ER.
pat

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7 years 7 months ago #37692 by DougG
Bambi,

Hope things are going better...that your husband has seen someone who can provide some relief. Let us know how things are going.

Anita

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7 years 7 months ago - 7 years 7 months ago #37687 by Bambi
So I went to exercise and came home to my husband being in more pain. Fortunately, our daughter had come by a little bit before. It is the flank pain bothering him. He said it was a pain level of 4-5, but also described getting up and walking around because it hurt. To me, that is higher than a 5. He called and left messages with both Dr. Wilson and with his Boulder urologist who did the TURB. It has been an hour and we haven't heard back from either. It is unfortunately the noon hour. If they don't call back in a few minutes, we'll call again. It got better for a little bit- long enough for him to eat something. But now it is beginning to bother him again. We will be talking to someone about it by the end of the day- hopefully not just urgent care or ER!
Bambi

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7 years 7 months ago #37686 by Patricia
Flank pain is generally an indication of kidney problems...possibly a backup of urine to the kidneys as a result of the prior TURB and its location. He may have scar tissue blocking urine. Sometimes a lower than the normal body temperature is a sign of infection so do check that. I would contact Dr. Wilson as its nothing to mess with. How is his passage of urine? If its small amounts and frequent something is definately going on.
pat

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7 years 7 months ago - 7 years 7 months ago #37683 by Herb
Sounds like Dr. Wilson has a protocal she is using that is successful; in all I had 4 different urologists, they did not always agree - like to have BGC and then Chemo - I chose along with talking to Oncologist what I thought was best for me. I am here typing on a blog that really has helped me --- I think it is true: there is a scientific side to medicine but it is still an art --- and also I think psychology has a lot to do with it --- if doctors sincerely empathize and can track with who you are you are in great hands. But what do I know I am an old retired priest. Take Care, Herb†

Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50's.

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7 years 7 months ago #37682 by Bambi
Thanks again Patricia and Cynthia-
Dr. Wilson did say that if he doesn't start feeling better she would recommend scoping to get a better idea of what is going on before proceeding with BCG. I think that they will probably look at the slides again but I'm going to encourage my husband to contact her today. He is having pain in his left side still since the other day. And to ask how long the look for the gene you mentioned would take as well. You are amazing Patricia in knowing so much. That is exactly what she is looking for, we just couldn't process all the info towards the end. I am going to buy a small recorder today or tomorrow and have it with me next time. I thought I had one from my speech therapy days to take, but when I put new batteries in before the appointment, it wouldn't really record. Had I known how much information she would really be giving us, I would have made sure to have one.
I'm concerned about how he feels. He has not had a fever at any point, however.
Bambi

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