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newly diagnosed

7 years 11 months ago #35434 by Moonerj
I agree with the others regarding seeking a 2nd opinion, since you are close to MSK. They are tops when it comes to bladder cancer.
All the best,
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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7 years 11 months ago #35432 by sara.anne
I would echo Pat's suggestion that you seek a second opinion at a major medical center (MSK?) ASAP. The best that will happen is that you will find that your diagnosis and treatment plan are just right. The worst is that you will get really good advice and medical care. There are urologists and there are urologists who specialize in bladder cancer. You want the latter.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 years 11 months ago #35426 by Patricia
nevo's...you're so close to Memorial Sloan and being T1 high grade i would seek a second opinion before i start BCG. Memorial has some of the very Top bladder cancer specialists on board.
Dr. Harry Herr, Dr. Bernard Bochner are 2 of the top specialists
Dr. Herr
http://www.mskcc.org/prg/prg/bios/54.cfm
Dr. Bochner
http://www.mskcc.org/prg/prg/bios/616.cfm
you want to make sure pathology is correct in this case.
pat

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7 years 11 months ago #35421 by Joey
Hi, I have had 18 BCG treatments and so far I have been clear since April 08. For about 30 hours after the treatments I have side effects, however after that I am OK. It certainly appears to be working. I will start my next three in Jan, numbers 19 - 21.

Joey

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7 years 11 months ago #35418 by nevosjona1
hi It was non invasive but high grade tumor. I am located in NJ my work was done by a urologist

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7 years 11 months ago #35413 by Patricia
nevos..where are you located? Were you treated by a local urologist or a major university or cancer center? What exactly did pathology say?
Second opinion always a really great idea especially with pathology. we can help with that.
pat

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