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newly diagnosed; where do I go from here?

8 years 10 months ago #34651 by Patricia
No he was not Joe. My surgery was done by Dr Inderbir Gill who was at The Cleveland Clinic and now head of USC/Norris
Urology. I'm female and wanted an Indiana so needed to find female friendly Uro's...harder search. But Dr.Steinberg could have been on my list as he does do the Indiana.
And Dr. Koch at Indiana U. does a great job with neo's also. Its all in the geography.
pat

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8 years 10 months ago #34650 by upnorth1414
Hi Pat,

Thanks you as well for your quick reply to my post.

It is very comforting in this time in my life.

I look forward to meeting with Dr. Steinberg.

I'll guess now I have to ask you if he was your physician as well.

One of my goals is to find a few men who have gone through this procedure to see how things worked for them.

Thamks again for your reply and look forward to many more post with everyone here.

joe

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8 years 10 months ago #34648 by Patricia
Hi Joe...Cynthia is right ..Dr. Steinberg is one of the top uros in the country. A second opinion absolutely necessary and he'll probably recommend both surgery and chemo with so much invasion.
And i'll answer for Cynthia..yes he was her surgeon. She's on her Honeymoon :woohoo:
pat

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8 years 10 months ago #34647 by upnorth1414
Hi Cynthia,

Thanks for your timely reply and concern.

Dr. Steinberg was the next physician I was going to schedule an appt. with.

Would you mind my asking if he was your physician?

Thamks,

Joe

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8 years 10 months ago #34641 by Cynthia
Joe,

I am sorry you have to be here but welcome to our community. I would highly recommend Dr. Gary Steinberg of the University of Chicago Hospital. He is considered one of the best in the country you are lucky to be so close. His contact information is at the following link. Good luck and please ask as many questions as you like that is what we do here.

http://www.ucurology.org/faculty/gary-d-steinberg-md-facs

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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8 years 10 months ago #34640 by upnorth1414
Hello everyone,


I am 50 yr old male who used to smoke.

I was recently diagnosed with bladder cancer.

The final diagnosis was:

High grade, deeplyinvasive Urothelial Carcinoma

Tumor invades thick deep muscle bundles

Foci suspsicious from lymphatic invasion

Adjacent foci of highgrade Urothelial Carcinoma-in-Situ


I am not even sure what I just typed here means.

I've gone to see a Urulogist(Dr. Coogan at Rush Medical Center in Chicago) and he recommended the removal of my bladder, prostate and lymph nodes and having it replaced with a neo-bladder.

I also went to see an onocologist that the Urologist recommended and even though he said chemo and radiation where an option, that bladder removal was the more promising treatment.

I am going to see another Urologist for one more opinion, but was hoping if anyone out there can tell me if I am on the right track.

Like anyone in this situation I feel that I am being pulled in a few different directions and quite honestly am not sure yet if this has all sunk in.

Thanks in advance for your help.

Joe

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