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second opinion in Southern Oregon needed

9 years 3 weeks ago #34672 by mmc
Have him lay on his back and use a small pillow to prop.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
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9 years 3 weeks ago #34671 by clueless
Well, we got the reports sent off to the Portland doc. Tomorrow I can call again to schedule the appointment. They wouldn't give me one until they had the papers.

George woke up this morning in much pain. I guess it's from the epididymitis. The pain went away as he started moving about. Then, he laid down for a nap in the afternoon and woke up with much pain. He says the pain goes all the way into the leg...Again, after being up for a bit it gets better.

The local doc seemed to think it was common and normal and would go away after a few weeks. If so, why didn't he warn us about it?

He said to elevate the testicles - how does one do that? He sleep on his belly always.

I can't wait to get George to Portland.
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9 years 3 weeks ago #34638 by clueless
Well, he surely didn't act like himself, and he didn't sleep either.

Ok I talked to the Portland docs office and tomorrow we have to go to the local doc again to sign some paper authorizing them to send the records. Once they are sent, we can make an appointment.

George feels chipper today, went to the library by himself and went to the supermarket and bought some food he likes.

He's been eating again since off the cipro...
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9 years 3 weeks ago #34626 by Patricia
OOPS..my bad...sorry about that. I should have gone back to the beginning and realized he did not have the BCG.
However here are some drugs which do treat his condition..and a lot of reasons why men get this..but skip over the ones that do not apply.
http://emedicine.medscape.com/article/436154-treatment
Just have to find the right drug he does not react to. And you're right Cipro can cause personality changes and insomnia..its a rare one but it happens.
pat
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9 years 3 weeks ago #34627 by Patricia
OOPS..my bad...sorry about that. I should have gone back to the beginning and realized he did not have the BCG.
However here are some drugs which do treat his condition..and a lot of reasons why men get this..but skip over the ones that do not apply.
http://emedicine.medscape.com/article/436154-treatment
Just have to find the right drug he does not react to. And you're right Cipro can cause personality changes and insomnia..its a rare one but it happens.
pat
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9 years 3 weeks ago #34624 by mmc
For being clueless, you sure seem to be doing the right things!!!

I think (IMHO) that you are doing the right thing by waiting for the 2nd before deciding the course of action.

Also, we all pick up the lingo as we go. You are way ahead of many already. :)

I don't know anything about infectious diseases so I have nothing to add along that line.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
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