Meeting on Monday with team. Help!

Where about in The UK are you? I'm UK based too - Stockport.

Betsy Mae

Barny...2 weeks is nothing to get the correct diagnosis. If you can get in with Royal Marsden do it. Meanwhile see what the present team has in mind and how ever you do it in the UK get ahold of the pathology reports and the discharge summary from the hospital. Its very easy to do here in the US..we just call the hospital and sign for them. I do not know protocol in the UK. And if you can get the slides which we also can do here do it. Royal Marsden will want to see everything.
You need to find out if any muscle tissue was in the original tumor pathology. As for the solid tumor?? Maybe CIS which is always high grade but treatable but really needs to be watched.
Take notes....Pat

Hi Mike

Thanks for your input.

Can't get hold of the second turbt report yet but will keep trying, also have made contact with Royal Marsden Hospital for second opinion but they say could be 2 weeks for appt which i feel at the moment, time is of the essence.

Thanks again and will be in touch.

Barney

Barney,

Unless there was some problem during the first TURBT, they should have removed both tumors. A follow up TURBT is usually (or at least should be) done around 6 weeks after.

What you describe sounds like two first TURBTs. One for each tumor. That would be strange so it may be that things just were not explained well. Your friend should get the surgical doctor notes and the pathology reports for each TURBT that was done.

G2 is basically just the measure of the aggressiveness. Ta is non-invasive and just on the inner lining of the bladder.
You didn't specify the stage for the second TURBT so it's hard to say anything until you know more.

A second TURBT is USUALLY to go the same site as the first and take more tissue in that same site to be sure they got it all. The pathology report should also indicate if they got clear margins all around the tumor or not.

If that is not the case, then your friend will need another TURBT to go back to two sites of the tumors and get more tissue and be sure to get clear margins.

The mytomicin is to prevent seeding of the cancer cells due to the surgery.

However, if the second TURBT comes back with more than a Ta staging, they may already have treatment in mind so it's a matter of waiting to be sure.

If she is not being seen by one of your top bladder cancer docs, then she should try to do that. It makes a big difference with regard to outcomes. Study after study confirms this. Another thing to do is get confirmation of the pathology by asking for that to be sent to a top cancer hospital in the UK for a second opinion. Seems that pathology is a bit of an art as well as a science and the top cancer hospitals tend to have better pathologists.

Mike

Hi Diane

Thanks for your reply.

To explain why first turbt incomplete, two sorts of tumour where found at the cyto, one was seaweed like, and the other a solid type tumour. The hospitals explanation was that my friends body couldnt take the impact of all being taken at once so i think they just removed the seaweed type one.

Thanks again.

Barney