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Deciphering doctor\'s descriptions

9 years 3 days ago #29186 by Flamenco.
I posted on a similar topic after a bulge inwards in the bladder wall showed up on a cysto. It turned out to be of no importance, and after a gyno exam, my doctor said it could have various causes amongst which were fibroids, gas and constipation. On the next cysto the bulge had disappeared.Hope all goes well for you with your examination,
Diane

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9 years 6 days ago #29121 by szito330
Thank you kindly for the responses, I appreciate it!

My appt. is in the afternoon, hope the dr. will tell me the results then.

Suzanne

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9 years 6 days ago #29117 by wsilberstein
The bladder expands as it fills and contracts as it empties, so there should be no nooks or crannies. The appearance of nooks or crannies, or a collapsed (rather than empty) appearance on an image suggests something is there creating that appearance. It does not tell you what, so the cystoscopy is the next step, and if there are possible tumors, a TURB after that.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 1 week ago #29108 by Patricia
some info on PH ranges......
http://www.rnceus.com/ua/uaph.html
Found one urologist in Conn. that is listed in Castle Connolly's
best docs
http://www.castleconnolly.com/doctors/full.cfm?source=google&doctorID=81CC016622
If insurance allows and you should get a second opinion..i'd hop a train in to NYC to Memorial Sloan. They've got the top uro's there.
Pat

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9 years 1 week ago #29106 by mmc
Suzanne,

The color only indicates how much blood is in the urine at the time. Pink when there is a little bit of urine means less blood then pink when there is lots of urine. The bleeding comes and goes so it's good to get a look.

I don't know about the "collapsed" look. That could be more of a visual description of the scan than anything else (but again, I don't know).

I think the cysto is the right next step to get a good look.

Good luck on the tests!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 1 week ago #29105 by szito330
Ann,

Yes, from time of hematuria on 11/9 until the cystoscopy on 12/8, with the other tests in-between, this is moving along rather quickly.

I forgot to ask about the type of hematuria. I'd mentioned it was the visible type, but I didn't describe it. The urine was pink. Does the color indicate anything?

I'd also mentioned the hysterectomy; I suppose it goes without saying that the hematuria was not related to me getting confused with having my period!

I do feel comfortable with this urologist. And the fact that he called me at home was nice. (Although alarm bells went off in my head, I don't have Caller ID and hearing his voice startled me.) Do doctors, rather than their nurses, call only if it's "bad news"? So that is another thing for me to add to the list of concerns?

I know I sound like a nervous Nelly, sorry. That is why, even without any official diagnosis, I decided to post here. I'd been reading the forum for a couple of days and everyone is so supportive and informative.

Well, here's to Tuesday, can't come soon enough!

Suzanne

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