Beglin...i would seriously consider getting a second opinion from a top uro who specializes in bladder cancer.
And Rosemary my uro said the same thing about puncturing the bladder or whatever and when I mentioned that to Dr. Herr at Memorial ...honest..he just rolled his eyes..guess he's heard that one before! Pat
HMMM.. I wouldn't say my uro had a well equipped facility, and when he took the first attempt at a biopsy, he missed and had to go and do it again.. he did cauterize afterwards.. and biopsy was negative. Not a lot of fun, but tolerable.
Retired USAF Col, father of 4, grandfather of 9, greatgrandfather of one.. Enjoying life to the max...
I went through TWO biopsies while under anesthesia in order to get enough muscle tissue for a good specimen. After the 2nd biopsy, my doctor still wasn't successful. That is when I decided to go to UNC in Chapel Hill to get the 3rd biopsy. (My local Uro was very fond of me, and he was afraid of hurting me or puncturing my bladder. He admitted this to my family)
I was never offered the option of not being put under anesthesia.
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006
Yes my uro even went so far as to say it was so small it was probably nothing...second opinion from Memorial Sloan confirmed T2 Grade2 CIS....how lucky am i? Granted i don't have my original bladder but i've got one..its just in a different place. Pat
all one needs to do is check out the metastatic area to find dilligent patients and not so dilligent uro's who felt the naked eye was all they needed to access the grade of tumor/tumors.
I can't help but be amused. I well remember my uro finding the origianl cancer at the in office cystoscopy and muttering "It's not more than a grade 1 or 2." I had no idea he was talking about cancer. Fortunately, he was diligent, even though we've had a parting of the ways over his management (or the lack thereof) of my stricture. Although, when I had the slides reviewed at Harvard, even though they concurred about the grade 3, they had concerns that there was too much fulguration to reliably say the lamina propria was not invaded. If I knew then what I've learned from this forum 6½ years later, I would have insisted on more thorough evaluation. Well any way, I got lucky I guess.
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...