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12 years 11 months ago #7594 by wendy

i,v had a bit of a surprise today,after about 3 weeks of pelvic and groin pain i took myself along to my doctor expecting a lecture on the amount of training i,m doing in an atempt to get my full fitness back.to my supprise my doctor seemed concerned she talked to me about the possibilaty of a secondary cancer.i did,nt think that even was possable.


Hi Ian,

I'm sorry about your worries. Which doctor is suspicious now, the uro? I would be surprised if it were because uros know that grade 1 blc metastasises in less than 3% of cases. Some studies say the risk is more like zero. But because nothing is 100%---there are no guarantees in cancer-land---and because mistakes do occur in grading and staging (pathology), it is better to be safe than sorry and check out unusual symptoms in a young and healthy man like yourself.

My sister Maureen/Mo who also has a Ta,G1 tumor (but it was a singular one) was also thoroughly scanned and tested after her first tumor and her recurrence just to be very sure. As a breast cancer patient I've had so many xrays and bone scans over the last 7 yrs I lost count, but the bone pain was a side effect from my treatments. Waiting for these tests to happen is horrible...but the chance of them showing anything even more horrible is so small, it's worth it just to rule out cancer as the reason for any pains you may be having.

How long till you get the test done? What is the nature of the pain you have?

Thinking of you,
Wendy

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12 years 11 months ago #7593 by Rosemary
Ian,

We're behind you here. The next two weeks are probably going to be filled with apprehension. Hopefully, it will turn out to be a benign situation. It is very, very wise to keep on top of it.

Please keep us posted as to how things are going.

Your BC friend,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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12 years 11 months ago - 11 years 1 month ago #7590 by egtmcsq

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12 years 11 months ago #7420 by Rosie
It seems my earlier post was taken out of context and/or not truly relating to my point. I am a 7 year survivor and am glad to see there is so much more clarification in the various types, grades, history of bladder cancers than was available when I was first diagnosed. Seven years ago we were all clumped together in treatment and prognosis. There is now great distinction made in treatment depending on which of the 15 plus different types of bladder cancer and the grade of that bladder cancer. There was little distinction made 7 years ago. Now that there is an in-depth report on superficial non-invasive bladder cancer offered through the link to bladder cancer web cafe I am encouraging everyone in that catagory to take advantage of that and read it. Many unwarrented fears can often times be set aside. Rosie

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12 years 11 months ago #7383 by Zachary

Better to be scared and filled with knowledge than to have our heads in the sand and be unprepared if we get the shock of our lives with a change in status.


There's a Chinese proverb that says "He who asks a question is stupid for five minutes. He who doesn't ask is stupid for a lifetime." In this case, how very true.

"Standing on my Head"---my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein

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12 years 11 months ago #7381 by wsilberstein

When I was first diagnosed I read posts that were consistently from those with invasive or those having a cystectomy. I thought that was going to be the general course of my journey.

Rosie,
I first joined this forum when I found it 6½ years after my cancer when I was looking for information on urethral strictures. I seriously began to wonder what I didn't know about all the people who had recurrences, including some after long stretches cancer free. It is frightening, but I'm here to tell you that even with a high grade tumor and CIS I've never had a recurrence. I hope it stays that way. Even though the recurrence stories scared me, I found strength in how all the survivors of recurrences coped. Better to be scared and filled with knowledge than to have our heads in the sand and be unprepared if we get the shock of our lives with a change in status.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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