Time Between Recurrences

jwood108
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3 weeks 3 days ago #61789 by jwood108

Replied by jwood108 on topic Time Between Recurrences

I was first diagnosed in 2005 with a single low grade tumor. My Doctor removed that and just had follow-up Cystoscopy's. 18 months later a few more tumors popped up so I underwent BCG treatments. I did 3 month, then 6 month, and finally yearly Cystoscopy's and was all clear until November of 2022. Another couple of tumors, CIS this time, and a round of BCG. Follow-up Cysto found a couple more spots so currently doing a second round of BCG.
After 10 year clean, I asked my Doctor why continue with the yearly scopes. He said, "it's cancer, why wouldn't you?" Glad I listened to him.

Good luck and keep vigilant.......

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DougG
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1 month 2 days ago #61779 by DougG

Replied by DougG on topic Time Between Recurrences

BigRIJoe,
Doug was initially diagnosed and had his first TURB in May 2001; subsequent TURBs were:
Dec 2004 (42 months)
Feb 2006 (14 months)
May 2007 (14 months)
Mar 2008 (14 months)
Dec 2008 (10 months)
Mar 2016 Removal of left kidney (7 years 3 months) due to bladder cancer in the kidney
No TURBs since 2016. Still having regular checkups every 6 months.
Sounds like you have gone longer between recurrences than Doug did initially. I still remember saying to the doctor on that 10 month recurrence "This is too soon." Most import advice - keep your regular checkups, don't back down! Follow your doctor's advice, get a second opinion when you feel you need one. Keep living and enjoying your life!
Anita

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Alan
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1 month 4 days ago #61778 by Alan

Replied by Alan on topic Time Between Recurrences

I just wanted to confirm your post is being seen. However, I am fortunate that I have never had a recurrence. You post does validate the need to still have scheduled appointments for whatever interval (mine are now yearly) or situation we are in.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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BigRIJoe
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1 month 4 days ago #61776 by BigRIJoe

Time Between Recurrences was created by BigRIJoe

I was initially diagnosed with a HG stage o papillary growth in 2016. 36 months later had a recurrence: HG stage zero papillary tumor Had another recurrence at 42 months in February of this year. 2 HG papillary with "a flat CIS tumor How does the intervals I've experienced compare with others in this group's segmant?

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Time Between Recurrences

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