Suspected BCG itis

2 weeks 6 days ago #61046 by Jnani
Replied by Jnani on topic Suspected BCG itis
Thank you dear Jack.

Please Log in or Create an account to join the conversation.

2 weeks 6 days ago #61044 by Jack R
Replied by Jack R on topic Suspected BCG itis
Jnani,

I attach a link to a journal article about BCGitis.
Hope you have some answers soon. We were (I assume) all cautioned about the possibility of a rare reaction to bcg.

www.ncbi.nlm.nih.gov/pmc/articles/PMC4635097/

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
The following user(s) said Thank You: Jnani

Please Log in or Create an account to join the conversation.

3 weeks 1 day ago #61038 by Jnani
Suspected BCG itis was created by Jnani
After a month+ of malaise, fatigue muscles pain, and some low fever, Med team is testing me for BCG itis.
The bacterium was not seen on a chest x-ray, will go through a high res. CT, stomach ultrasound and various blood tests soon
without clear findings will be given isoniazid, rifampin, and ethambutol; reaction to this treatment might prove the suspected diagnosis
If indeed BCGitis - will have to move to another (chem..) treatment
Thank you!

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne