No, I am not now on BCG. I was diagnosed in 2008 with both papillary and CIS. Then did the 6 week BCG induction series, followed by almost two years of BCG-maintenance where I received BCG once a week for three weeks every three months. I did have episodes of "BCG-induced cystitis" where I had to wait a few weeks until it healed before resuming BCG treatments. Due to increasing side effects I was on a reduced dose of 1/3 the original dose by the time the maintenance treatments ended.
At first, after the diagnosis, I was having cystoscopy exams every three months. After two years this went to every six months and when five years had passed with no recurrence I went to an annual cystoscopy exam which will go on "forever."
Due to the BCG I have now been cancer-free for over 12 years.
Sara Anne