Number 4 of 6 BCG

1 year 1 month ago #59191 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG
Number 5 of 6 down. Pain on urgency same which is not good news. Forcing fluids and getting volume per pee up helped. But oh that pain. Starts on urgency then after flow starts it kills.

The amount of tissue 1st and second day was impressive!!!

I used heating pad (saw someone here suggest) and it seemed to help.

One more to go for induction phase.

T1 Grade 3 with CIS

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1 year 1 month ago #59166 by Regor
Replied by Regor on topic Number 4 of 6 BCG

Good to hear your facing it and pushing through ;)

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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1 year 1 month ago #59163 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG
For those not eating at the time here is a picture

T1 Grade 3 with CIS

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1 year 1 month ago #59162 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG
Had number 4 of 6 induction this week. Wow did I get a lot of tissue and some clots next day. I assume that means it’s working.

T1 Grade 3 with CIS

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1 year 1 month ago #59159 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG
I read good things about Connaught. Too bad it’s no longer available.

And thanks for advice. Good luck with your treatment!!!

T1 Grade 3 with CIS

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1 year 1 month ago #59158 by Jack R
Replied by Jack R on topic Number 4 of 6 BCG
Shacky73
Your BCG experience sounds similar to mine, and the effects can slowly increase.
It helped me to know that the worst resolves in 12 to 14 hours after the first void.
During those first hours it helped me to drink fluids, even with little return. Warm liquids (coffee) is my favorite.

I would get comfortable in bed, and place a urinal to receive the few ml + clots & tissue, and put a hot towel or microwaved heat pad over the bladder and TRY to relax through the urgency. Some time in a hot shower, with pressure shifted to other parts of the bladder while standing was sometimes a help.

I never quite figured out a pattern, but changing position - sometimes - seemed to help quite a bit, at least for a little while. I'm sure we are each different. I started on Connaught BCG and was switched to TICE BCG after 9 instillations.

Hopefully, Tokyo 172 will do the trick.
Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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