Number 4 of 6 BCG

1 year 4 weeks ago #59237 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG
I do have Urobel but MD said not to use. Perhaps because it has a anti inflammatory aspect?

Hope your husband does well with Neobladder!

T1 Grade 3 with CIS

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1 year 1 month ago #59221 by Golfer
Replied by Golfer on topic Number 4 of 6 BCG
My husband had a burning sensation after BCG treatments, and the urologist perscribed Uribel tablets that really helped. Be aware it turns the urine blue.

Also, looked at the photo and it was mild in comparison to flushing out the neo-bladder after surgery. That is really gross ! I've been doing it twice a day for a week now since we got home from the hospital. Another week to go before follow up to see if neo-bladder healed for activation.

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1 year 1 month ago #59219 by Jack R
Replied by Jack R on topic Number 4 of 6 BCG
Shacky73

That's the kind of photo that would send you running to the doctor, if you wern't being treated already, and expecting this as a "side effect" of treatment.

Hoping that BCG does the job for you. Not a barrel of laughs, but still the best chance of resolving the issue.

Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
The following user(s) said Thank You: Shacky73

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1 year 1 month ago - 1 year 1 month ago #59215 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG

T1 Grade 3 with CIS

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1 year 1 month ago #59212 by Regor
Replied by Regor on topic Number 4 of 6 BCG
Congrats on the Milestone !

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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1 year 1 month ago #59211 by Shacky73
Replied by Shacky73 on topic Number 4 of 6 BCG
Number 6 of 6 in the books!

It was again very painful. Not constant but urgency off the charts, pain from muddle to end of stream, and small volumes which kill. The first 6 hours are the worse.

When describing symptoms my treatment team felt I had infection. I was actually hoping that would be. The case and I could expect relief from antibiotics. Unfortunately culture came back negative.

Nothing I can’t handle but glad I have some time before maintenance 3 weeks.

Lots of tissue again for first 2 days in urine. Kind of proud of it. Would share picture if I could figure out how to attach.

Now I have scope first week in May then the 3 week maintenance.

T1 Grade 3 with CIS

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