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Chronic Cystitis

1 year 1 month ago - 1 year 1 month ago #58446 by Knifedealer
Chloecat, be sure to use the turmeric along with black pepper. The curcumin in turmeric is not absorbed very well by the body and the piperine in black pepper boosts the absorption of curcumin. Both have been shown to improve health due to their anti-inflammatory, antioxidant and disease-fighting qualities. Also, turmeric is fat-soluble so taking it with coconut or almond milk is advisable.

Are you female? I reviewed your previous posts, but was unable to determine, but assume so by the Chloe (partial) screen name. I had horrible dysuria after TURBT last October and found it easiest for me to get on all fours when urinating. I'm a guy however. This technique may not be female friendly. The phenazopyridine helped. I didn't start taking turmeric (in the form of Golden Milk) until some time after, so I cannot provide firsthand knowledge of its effectiveness against painful urination. Best to you and please keep us posted.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3535097/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5664031/

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1 year 1 month ago #58436 by Chloecat
Hi Cynthia, you're absoultely correct about holding it, not a good idea. As for water, that's all I drink! I did see my doctor again and she's prescribed a steriod drug that I've started taking. Hoping this will calm things down. Thanks for taking the time to respond.

Barbara (aka Chloecat)

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1 year 1 month ago #58427 by Cynthia
Drinking water during the day will help thin the urine so it doesn’t irritate as much. And I understand wanting to hold your urine due to pain but if the urine contains irritants it is counterproductive. Also make sure your doctors know of any supplements you take. Let us know how you are doing.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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1 year 1 month ago #58425 by Chloecat
Thank you very much for the tumeric suggestion. I just purchased some at the store this morning and will start taking it today. I have great hopes it will help. I figured it can't hurt.

Thanks again.

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1 year 1 month ago #58418 by NelsJenn
Dear Chloecat,

I am sorry that you are experiencing this pain.

I believe the cystitis is inflammation of the bladder. I don't have this issue, but I have used CBD from cannabis tinctures for pain from my TURBT procedures. This has helped me with urination pain and cramping. To heal the inflammation of the bladder, I am using turmeric, since it is a natural anti inflammatory.

Congratulations on not having the cancer cells reappear! And I hope the above info helps. Lee

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1 year 1 month ago #58415 by Chloecat
I was diagnosed with non-muscle invasive bladder cancer in April, 2018. I had the TURBT procedure right after diagnosis, went through weekly BCG treatments and I just completed 12 months of monthly BCG treatments. My last cystoscopy on Sept 11, revealed a "red patch" that my doctor biopsied and the pathology report came back negative. Good news! So right now I'm cancer free. My issue is the chronic cystitis I've had ever since I started the BCG treatments. The level of pain when I urinate varies from mild to what it is right now, extremely painful. Every time I went in for a BCG treatment I discussed this with my doctor and would get the same answer every time. She would put me on an antibiotic "just in case it was a UTI", (which it never was), told me to take pyridium or Azo, (which I always do and hate, because it turns everything orange), and the latest for the past few months has been to go on a low acid diet ( which is tricky). Per the 3 different lists of foods she gave me, that I can have or should avoid, I have eliminated most everything I ate that could possibly be considered acidic (right now I would kill for a glass of wine!)
Nothing helps and I'm tired of feeling like this. I put off urinating as long as I can because I know it's going to hurt. Does anyone have any suggestions, answers or helpful hints for me? I'm just tired. Thanks.

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