Others may have a different experience than what I am adding. For low grade it is mostly "waiting and watching" as you and you doc have done. I am guessing he didn't do maintenance to hold as a back up in case it comes back again. The good part is low grade. I am not aware of any new protocol. Here's hoping it is gone for you.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
1 year 3 months ago - 1 year 3 months ago#58398by Win55
I am 3.5 years cancer free and hoping for another good report in December. As usual the closer the date for my appointment the more I start to stress about it. Is there anything new in low grade BC treatment other than TURP and BCG? I take a few supplements recommended to me and try and eat healthy but I'm always looking to improve my odds at beating the cancer.
6/2014 - Initial diagnoses: Low Grade, Slow Growth but Large Tumor, NO mitomycin after surgery
7/2015- 3 month cysto schedule, all cancer free until 8/2015
8/2015 - Cancer returned multiple small spots (10-12), all low grade, mitomycin after surgery
11/205 - Completed 6 weeks of BCG
1/2016 - One small spot cauterized in office
4/2016 - Three small spots removed, low grade, mitomycin after surgery
5/2016 - Started Lycopene and Genistein supplements at Doctors recommendation
6/2016 - Second round of 6 week BCG
8/2016 - Was advised to not go through with BCG maintenance, new patient care recommendations
1/2017 - Cysto no cancer, New doctor agreed no more BCG for low grade
5/2017 - Cysto, no cancer found
11/2017 -Cysto scheduled for later this month. Doctor has suggested that I go to 12 month Cysto schedule.
1/2019 - Cysto no cancer
12/2019 - Cysto scheduled