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Here we go - CIS & BCG

10 months 6 days ago #56709 by Regor
Had my post-TURBT appointment today, no surprises. Induction BCG scheduled. I already had my Pathology verbally from my Dr, today I got the actual report -

FINAL PATHOLOGIC DIAGNOSIS
A. Bladder, left lateral neck, biopsy
- FOLLICULAR CYSTITIS WITH CYSTITIS CYSTICA

B. Bladder, left posterior neck, biopsy
- UROTHELIAL CARCINOMA IN SITU
- BACKGROUND OF FOLLICULAR CYSTITIS

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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10 months 3 weeks ago #56624 by Regor

Finalman2 wrote:
There's a good number of people living with a CIS diagnosis and have done very well, wishing you all the best with the future treatment!

Embarking on my BCG journey tomorrow morning, time to get this done!


Thanks FinalMan - and looking forward to hearing of your BCG experience. I will probably be starting my BCG in ~5 weeks, so I have a little bit of a wait.

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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10 months 3 weeks ago #56618 by Finalman2
Hi Regor,

Unfortunately I can't say much surrounding CIS but I have just started my journey on the NMIBC with a TaG2.

The good news is that it was caught early enough to be Ta!

There's a good number of people living with a CIS diagnosis and have done very well, wishing you all the best with the future treatment!

Embarking on my BCG journey tomorrow morning, time to get this done!

28/10/18 - Blood???
24/12/18 - Dx TaG2
15/01/19 - Start BCG
06/04/19 - Cysto + Biopsies - CANCER CLEAR
The following user(s) said Thank You: Regor

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10 months 3 weeks ago #56610 by Regor
Hi all,

I had my ongoing intro thread and initial steps described in "Newly Diagnosed, New to the forum" ("GREG, NEWLY DIAGNOSED KIDNEY STONE AND PAPILLARY TISSUE").

Today I got the call from my Doctor in regards to the post-TURBT Pathology report.
Summary:
Non-Invasive - YAAAA!!
Carcinoma in situ - Ohhh...

Truth be told, I was going to be happy with a diagnosis of Ta Low Grade, with tumor removed and minimal maintenance Cystography.

Sorta caught me off-guard of the seriousness of CIS diagnosis.
Initial email from Doctor (since I missed phone call and voicemail) -
"No further surgery is recommended at the moment, however the standard treatment is up to 3 year course of BCG (starting with 6-week induction course) to try to prevent recurrence and progression."

I've seen other posts in regards to BCG and CIS, and especially with the success of sara.anne and others. Looks like this forum will be stuck with me for a while, but I plan to be a fighter and looking for the positives of an early catch and long-term projections.

Thanks everyone!!
Greg

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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