I am doing the "Gemzar" Gemcitibine treatments after 4 TURBT with 6 weeks BCG each failing and getting ill on BCG. Always my T1-Hi Grade returned 3-6 month intervals on BCG but have passed 2 each 3 month cystoscopes followed by 3 weeks "maintenance Gemzar". BCG didn't work well me but so far Gemzar has..... or maybe a combo both finally came around to being effective who knows??? Good luck let me know if go on Gemzar for few we Hi Grades are using that is seems.
I just came back from a business trip. Sorry to hear the news.
I am curious about your Doctor's plan. I heard that there is still a shortage of BCG which might be why he chose Gemcitabine instead.
I remember about 2 years ago, BCG not working for me and I had to choose either BCG + Interferon or removal. Looking back, I feel lucky that I have choices. So I just go one thing at a time and enjoy each day...
BCG is the treatment of choice for most cases of CIS. Sort of think I might be with your doc on this one. Perhaps you should really probe his reasoning on why he prefers this....my doc loves to discuss (debate?) with me and I always feel better when I understand what his thinking is.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Just to give an update, the most recent biopsy came back positive for CIS. The only good news is that it is still only on the top layer and hasn't invaded the muscle. I was given the option of going back on another 6 weeks of BCG (encouraged by my doctor) or go on a course of Gemcitabine. I have to admit, I am not really that familiar with Gemcitabine, and the studies I have looked at would seem to indicate BCG is still the best route. I will check the forum for other experiences with it to see if it may be a better option.
My fear is that since it has come back, if whatever I choose this time doesn't wipe it out, the next step may be removal of the bladder.