Jack!! Good to hear from you my man!
Haha..isn't it?? I think they should rename it bladder ANNOYANCE sometimes, then more then anything, lmao.
It really truly is annoying and (if you allow it) nerve wracking waiting for the next checkup, or to start the next treatment. Right you are!! Sadly enough lol.
Yes, I was getting that vibe off the bat, that especially with my scenario; the decision whether to intervene with treatment like BCG or simply watch and wait; is quite simply a not very simple one.
My biggest decision im weighing right now is which Urologist to see on this next cystscopy.
I have one schedule with DR shandra wilson in mid april.
I have one schedule with DR roseavear in mid May (the uro i've been seeing in the springs)
My sister, a nurse, says "If it's not broken don't fix it" - meaning I should just stick with Dr rosevear because dr wilson had good things to say about him, and he's done me pretty good so far. I mean through all this I've felt prety darn good and also had "good" pathology.
Annnnd a good part of my gut is telling me just to stick with him, and only switch to Dr Wilson if things get worse.
Buuuut another part of my gut and heart is telling me to go see Dr Shandra Wilson for this next cystscopy, and have her do a cystscopy for me for the first time, and essentially switch entirely over to her for my care. Most of this stems with how much more she talked with me / conversed with me / how much more "overall" knowledge I got from her during out first and only meet up, which was an hour consulation, that lasted more then the full hour.
I think I got more knowledge and insight from that, in that hour, then I have the entire time seeing Dr rosevear down here.
So part of my gut says, go with her, because shes the specialist's specialist, and because she handles sooo many more BC patients then Dr Rosevear (all she treats is BC - where as BC is only a smaller percentage of his overall patients).
But I just can't friggin decide. And I know no one can decide for me, which doesn't make it any easier
.
But I got to make my mind up within the next week or two, because if I go with her, my cytscopy with her will be in mid April.
Again, she says she trusts him, and trusts my care with him. His care includes the gameplan I mentioned in this first post. Based on what I learned from her a few months ago, she would have a similar game plan, to my current uro, I just wonder if her larger expertise would be of significant benefit to me (whether it is spotting things that dr rosevear doesn't have the experience to notice; or whether it's a treatment method she's developed specifically for NMIBC/LG BC patients that perhaps my current uro doesn't know of or utilize.
I know the consensus on here is to go to a cancer center / a specific bladder cancer urologist. So based on that consensus alone, I should already be switching fully over to dr wilson.
Please someone give me some insight. This become a tough, very tough, decision for me to make.
Thanks all and much love