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What next?

2 years 3 months ago - 2 years 3 months ago #54907 by Alan
Welcome. There are so many variables there are simply no easy answers. Plus, everyone is different on how ther body reacts. It may even be a time for a set of fresh eyes with a second opinion. Just make sure it is a bladder specialty center/teaching facility like an MD Anderson etc.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 3 months ago #54905 by sara.anne
Sorry that I was not able to respond promptly. Believe it or not. We had a Board meeting for the American Bladder Cancer Society this afternoon.

Afraid that no one can really answer your question. Anything abnormal in the bladder needs to be examined. Both irritation and bladder cancer can look different depending on the location and type. Wish I could be of more help, but this is why they do biopsies.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 3 months ago #54897 by sara.anne
First, irritation from BCG is quite common (often called BCG-cystitis.) So it is likely that this is what your father has.
However, it DOES need to be checked out.

If it should be a return of the CIS, and there is no evidence of a spread into the muscle, a second trial of BCG or BCG with interferon is often effective, avoiding a radical cystectomy. However, if the second trial does not work a cystectomy can be life saving.

Here's hoping it is a BCG effect!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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