Hi sorry I didnt see this earlier! I had 6 treatments in 2016. When I was re diagnoses I had 3 more.
The last treatment really set me back. It took me about 3 weeks at least to feel up to doing my regular exercise. My doctor said my diet, etc.. won't make a difference. I'm back to exercising and feeling good again
Continuing to trust my doctors and God.
I have fatigue as well. What I have been doing is checking some of my other meds that I take and doctors are reducing dosages, etc. of any that cause fatigue. Like you I am eating a great diet and in fact lost 25 pounds by eliminating sugars, fats and processed grains. When I have to I take a nap. I also found that simple exercise, such as riding my bike for enjoyment and not heavy, fast pedaling helps with the fatigue too. It usually takes about 10 minutes on my bike for my energy to return.
2 years 4 months ago - 2 years 4 months ago#54916by Alan
Sara Anne along with others here are a solid rock of info. I am adding my 2 cents as a 10 year survivor. The majority of us will pass on from something other than bladder cancer. Add a favorite piece of advice that I got years ago is: "take everything one day at a time". Each day has enough worries. Easy to say but, enjoy life's journey! You will beat this!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I appreciate you more than you know. These are all things I need to hear and think about. I hope none of it needs to happen but you're right, I do need a plan.
Will be praying for you all,
I am sorry if we have contributed to your worry, Joanne. We will hope that you got it this time and that it won’t return. The odds are that it won’t. But if it should you need to be ready to face it head-on. I know that I have an imaginary file cabinet in the back of my mind where I have all sorts of contingency plans stored away “just in case.” It has now been ten years and I haven’t needed them. But if the day comes I will be ready.
And yes, it would be a good idea to discuss with your doctor what his plan might be if it does come back.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society