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Cystoscopy - post initial BCG treatment

7 years 1 month ago - 7 years 1 month ago #52914 by Alan
Replied by Alan on topic Cystoscopy - post initial BCG treatment
Jfoutz,

I am glad you were able to hook up AND that Dr. Harris was able to accommodate you. Please say hi to him. My full name is Alan Dale, ask him when he is going to play golf again! He is incredible!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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7 years 1 month ago #52911 by Jfoutz
Replied by Jfoutz on topic Cystoscopy - post initial BCG treatment
Alan,
Just wanted you to know I had an appointment with your nice Dr. Mansel Harris this morning and he is going to instill my BCG here in Marble Falls. Thanks again for posting his name, this is going to save me the 5 hour drive to Dallas each way.

Janice
Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 1 month ago #52859 by dtat60
Replied by dtat60 on topic Cystoscopy - post initial BCG treatment
Brother Sean, it looks like we are pretty close in time in finding out if the BCG has worked. My appointment is May 9th. Hoping you get a good report! I didn't have any symptoms with my BCG treatments other than some residual burning (not associated with urination) but I drank some water with baking soda and that went away. Did you have any ill effects during your treatment?

Peace and Love, Dave
08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG

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7 years 1 month ago #52858 by Sean T
Replied by Sean T on topic Cystoscopy - post initial BCG treatment

My next Cyst is in April, which is three months after my last BCG. I was happy with that but after reading some other comments that four, six, or even eight weeks is the norm, now I'm not so sure.
08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 doses total - last March, 2018). As of latest cysto, As of May 4, 2023 - cancer free!
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7 years 1 month ago - 7 years 1 month ago #52846 by Cynthia
Replied by Cynthia on topic Cystoscopy - post initial BCG treatment
Syncretic, You should be able to reply to your post at

www.bladdercancersupport.org/bladder-cancer-forum/8-non-invasive-superficial-bladder-cancer-questions-and-comments/45400-bcg-for-high-grade-invasive-tumour.html
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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7 years 1 month ago #52845 by Syncretic
Replied by Syncretic on topic Cystoscopy - post initial BCG treatment
Hi Dave,
My husband just started his BCG (2nd week now), and here in New York at Memorial Sloan kettering, the standard for him (T1HG + CIS) is to do a cystoscopy after 6 weeks after the end of the initial treatment.

Wish you the best,
Natalie

Ps- I started a topic on BCG , and got 2 replies and the topic was "locked". I can't reply or thank the responses, and no one can asnwer anymore. Anyone had that happen too?
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