At 53 went to the Dr with visible blood in the urine, sent me for an ultrasound and it show a tumour 1.4 cm.We go to the urologist/surgeon and of course had a TUR. When I went back to see him he said it was a nasty one T1 HG so we going to repeat the TUR and make show is all out. Back to see him and good news nothing left, he said this is as good as it get, OK.
Weekly BCG for 6 weeks, repeat TUR and all good. Monthly BCG maintenance for 3 month and then no more as the is a BCG shortage but urologist happy with cysto results, so cysto in 3 month again as per protocol. So after 3 month of no maintenance treatment at my cysto appointment urologist suggested installations of Mitomycin as an alternative treatment with very good outcome so I did get monthly Mitocycin for 9 month with flexi/cystos every 3 month.
On the 04/sep/2015 (2years and 3 month after first diagnosed) had a rigid cystoscopy with a non recurrence result. I was very happy to hear those words coming out the urologist. We are going to continue with cystos every three month.
I do read a bit and I get confused about chances of recurrence in my situation, so I take one day at the time and thank God for one day more everyday. I am 55 now and have a beautiful 2 months old grandson. Life is what it is, we can not changed it. Thank you for reading. God Bless