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11 years 1 month ago #44286 by wsilberstein
Replied by wsilberstein on topic I'm back
I think the last thing they'd want to do is remove the catheter and insert another before the anastomosis is fully healed. The urology team assures me it's normal.. They've been flushing once a day. I thought it would be more. But I also have a draining supra public tube a they just capped my stents.
-Warren
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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11 years 1 month ago #44283 by mmc
Replied by mmc on topic I'm back
By the way,you are exceeding expectations on those walks! Way to go!!
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 1 month ago #44282 by mmc
Replied by mmc on topic I'm back
That does sound frustrating. Have they been flushing it really well? You don't the foley to clog and stretch the neo out too fast.

Can they redo the catheter so it doesn't leak?

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 1 month ago #44281 by wsilberstein
Replied by wsilberstein on topic I'm back
I've been averaging 1/2-3/4 of an hour walks 3-4 times a day. Very frustrated by leakage around the urethral catheter. I have to wear adapter for my walks to avoid dripping all over the floor.
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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11 years 1 month ago #44278 by mmc
Replied by mmc on topic I'm back
Warren,

Thinking about you today. I hope your recovery is going wonderfully and that you are logging a lot of hallway miles.

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 1 month ago #44277 by Nix
Replied by Nix on topic I'm back
Warren, It is so good to hear from you and know surgery is over and you are on your way to full recovery!

Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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